#NACFC2018 — CFF Announces $100 Million ‘Infection Research Initiative’
The Cystic Fibrosis Foundation (CFF) will spend $100 million over the next five years to fund research aimed at fighting infections in patients with ... Read more
Updates
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We Need to Widen Inclusion Criteria for Cystic Fibrosis Clinical Trials
As readers of my column, you know that I write about the journey of life and the emotions of living with cystic fibrosis ... Read more -
Orkambi May Be More Effective in CF Patients with Inflamed Airways, Study Suggests
Two compounds that make up approved cystic fibrosis (CF) therapy Orkambi — lumacaftor and ivacaftor — may work more effectively in patients whose ... Read more -
Tips for Keeping a Germ-free Household
With the dreaded cold and flu season upon us, my household is gearing up to protect ourselves and avoid sickness as much as possible. ... Read more -
Hey, CF Caregivers, Your Loving Words Help Us Survive
It’s World Mental Health Day! Well, it won’t be when you read this. But it is as I write this. I posted some confessions ... Read more
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Synspira’s Candidate SNSP113 Wins FDA Orphan Designation to Treat Bacterial Infections in Cystic Fibrosis
Synspira’s inhaled SNSP113 candidate therapy against bacterial biofilms in the lungs of patients with cystic fibrosis (CF) has ... -
Let’s Talk About What a CF Cure Really Means
If you read my column last week, you know I care a lot about ... -
Synthetic Antimicrobial Peptide Can Destroy Biofilms in CF Patients, Study Reports
A therapy that involves a synthetic cationic antimicrobial peptide (CAP) can decrease Pseudomonas aeruginosa biofilm formation alone ... -
Why It’s Better to Be Open About CF, Especially When Dating
Dating can feel like a wasteland of hookups, insincerity, miscommunication, and ghosting. It’s sometimes ... -
Bicarbonate Eyed as Weapon to Combat 2 Most Prevalent Bacteria in CF
Adding bicarbonate, a salt, to the culture medium of Pseudomonas aeruginosa and Staphylococcus aureus, two ... -
What You Need to Know About Romance, or the Lack of, When You Have CF
I’ve been single for a year now, and I’m darn proud of it. I ...
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