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cystic fibrosis, News Cystic Fibrosis Ireland Establishes Grants for Personal Protective Equipment
Columns, Life in the Grey – a Column by Bailey Anne Vincent Does Everyone With CF Have Body Dysmorphia?
cystic fibrosis, News Research May Explain Why Different CF Bacteria Infect at Certain Ages
cystic fibrosis, News CF Foundation Invests $20M to Accelerate CF Programs in Partnership With Longwood Fund
cystic fibrosis, News Screening Finds Fewer Newborns in Ireland With CF Than Expected
cystic fibrosis ELX-02, Potential Therapy for CF Nonsense Mutations, Named Orphan Drug
cystic fibrosis, News Scottish Government and Vertex Strike Deal for Access to Kaftrio
Columns, Life in the Grey – a Column by Bailey Anne Vincent Putting Body Image Issues Behind Me: A #ScarPositive Story
cystic fibrosis, News Higher Prevalence of Oral Candida Fungus Found in CF Patients
Columns, Path Unknown - a Column by Wendy Caroline An Open Letter to the Chronically Ill Professional
cystic fibrosis, News Northern Ireland Reaches Deal With Vertex for Access to Kaftrio
cystic fibrosis, News Real-world Impact of Trikafta Will Be Evaluated in RECOVER Study
cystic fibrosis, News Thread-based Wearable Device May Help Diagnose, Monitor CF and Other Conditions
cystic fibrosis, News CFF Impact Grants Go to 4 Online Programs Engaging Patients, Community
Columns, Life in the Grey – a Column by Bailey Anne Vincent Diagnosis Privilege Can Be a Form of Discrimination
cystic fibrosis, News CF Canada Honors thyssenkrupp Elevator Canada with National Champion Award
cystic fibrosis, News AzurRx Begins Phase 2b Trial Testing MS1819 for Pancreatic Insufficiency in CF Patients
Columns, Valiant Voice – a Column by Lara Govendo Plan A Didn’t Work — Now What?
cystic fibrosis, News CF Patients in Wales Will Have Access to Kaftrio Under New Deal
cystic fibrosis, News ContraFect Given Up to $18.9M to Advance CF-370 for P. aeruginosa Infections
cystic fibrosis, News Inflammatory Markers May Help Predict Exacerbations in Children with CF
Columns, Life in the Grey – a Column by Bailey Anne Vincent Why Am I So Ashamed of Chronic Pain?
cystic fibrosis, News Clinical Trial Data Support Efficacy of Trikafta in People with One F508del Mutation and One Other Mutation
cystic fibrosis, News Urine Marker Could Help in Screening for CF Lung Infections, Study Finds
cystic fibrosis, News Vav3 Protein Creates ‘Docking Station’ for Bacteria, Leading to Lung Infections, Scientists Discover
cystic fibrosis, News New Technology Offers Potential for Faster, More Accurate CF Diagnosis
cystic fibrosis, News Dosing Starts in Trial of Oral Treatment, CB-280, for Chronic Lung Infections
Columns, Life in the Grey – a Column by Bailey Anne Vincent I Need to Give Up on Giving Up
Columns, Victorious - a Column by Brad Dell How I Failed to Cheat Death
cystic fibrosis, News Number of Adults With CF Likely to Grow by 28% Over Decade, UK Study Says
News NIH Grant Supports Computer Modeling of Bacteria’s Behavior in Mucus
Columns, Valiant Voice – a Column by Lara Govendo I Don’t Always Wear the Badge of Bravery
News Renovion’s ARINA-1 Shows Promise in Clearing Mucus, Cell Study Finds
News Rage Biotech Opens With Goal of Treating CF and Similar Lung Diseases
News Orkambi Benefits CF Patients Across Levels of Lung Health, Study Finds
Columns, Life in the Grey – a Column by Bailey Anne Vincent I Don’t Want to Die Because You Don’t Like Masks
News Common P. aeruginosa Mutations May Lead to Biofilm Growth, Bacterial Persistence, Study Says
cystic fibrosis Women With CF Use Combined Hormonal Contraceptives More Than Other Methods, Study Reports
News NuvoAir Home Monitoring System Bolsters Telemed Use in CF, Survey Finds
cystic fibrosis, News NHS, Vertex Strike Deal to Make Kaftrio Available in England
Columns, Life in the Grey – a Column by Bailey Anne Vincent We Need Better Representation in the CF Community
Columns, Victorious - a Column by Brad Dell I’m an Adrenaline Addict, but It’s Time to Minimize Risks
cystic fibrosis, News COVID-19 Source of Anxiety for Women With CF Children, Survey Finds
cystic fibrosis, News CHMP Gives Positive Opinion to Vertex’s Triple Combination Therapy Kaftrio
Columns, Valiant Voice – a Column by Lara Govendo I’m No Longer Resisting a Rest
cystic fibrosis, News Drying Does Not Clear Nebulizers of NTM Bacteria, Study Finds
cystic fibrosis, News Biofilm ‘Channels’ May Offer Better Way of Treating CF Bacterial Infections
cystic fibrosis, News Healthy Volunteers Do Well in AR-501 Trial for Chronic Lung Infections
Columns, Life in the Grey – a Column by Bailey Anne Vincent Cystic Fibrosis and Herpes Are Not the Same Thing
cystic fibrosis, News Renovion Raises $8.1M to Advance Lung Inflammation, Mucus Treatment
cystic fibrosis, News, syndicated Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic
cystic fibrosis, News Eloxx Resumes Enrollment in Phase 2 Trial of ELX-02 in Europe, Israel
cystic fibrosis, News 4DMT Receives Up to $14M from CFF for Development of Customized Gene Carrier
cystic fibrosis, News Poll Results Highlight Lack of Awareness About Cystic Fibrosis in the UK
cystic fibrosis, News Second-hand Smoke Affects Metabolism in Infants and Children with CF, Study Finds
Columns, Life in the Grey – a Column by Bailey Anne Vincent Death Is Not a Good Diet Plan
Columns, Victorious - a Column by Brad Dell Finding Fate in the Fallout
cystic fibrosis, News 3rd Annual CF FamilyCon, Free and Online, Starts Thursday
cystic fibrosis, News New Combination of CFTR Mutations Found in Chinese Siblings With CF
Columns, Valiant Voice – a Column by Lara Govendo How I Regained My Independence During the Pandemic
cystic fibrosis, News England Using Home Spirometry Kits to Cut Down on Hospital Visits
cystic fibrosis, News Kalydeco Approved in Europe to Treat Children with R117H Mutation
News Coalition Will Address Racial Disparities in Rare Disease Communities
News PROMISE Study Examines Trikafta Use Among CF Patients
Columns, Life in the Grey – a Column by Bailey Anne Vincent What Recent Exposure to the Virus Means to My Daughters
cystic fibrosis, News Suppressing Function of Chloride Channel TMEM16A Eyed as Potential Therapeutic Approach
Columns, Path Unknown - a Column by Wendy Caroline We Need to Recognize Diversity in the CF Community
News Viral Makeup of Intestines in CF Children Altered, May Drive Inflammation
cystic fibrosis, News Encala Improves Fat Absorption in CF Patients With Pancreatic Insufficiency, Study Shows
cystic fibrosis Microbion Awarded $17M to Advance Inhaled Antimicrobial Pravibismane for Lung Infections
cystic fibrosis, News Georgia College Student Receives AffloVest from Legacy Project
cystic fibrosis, News CF Registry in UK Collecting Data on COVID-19 Infections
Columns, Path Unknown - a Column by Wendy Caroline Why My Service Dog Is Staying Home
cystic fibrosis, News Pravibismane Receives FDA Orphan Drug Status for Treatment of CF Lung Infections
Columns, Valiant Voice – a Column by Lara Govendo Let’s Unite to Ditch the Charade of ‘I’m Fine’
cystic fibrosis, News Mobile PERT App Helps Improve Quality of Life for Children With CF, Study Shows
cystic fibrosis, News Real-world Use of Kalydeco for CF Highly Effective, Large-scale Analysis Shows
cystic fibrosis, News Microbe DNA Discovery May Lead to Noninvasive Test for CF Infections
Columns, Life in the Grey – a Column by Bailey Anne Vincent I’m a Dancer but I Can’t Walk Right Now
Columns, Victorious - a Column by Brad Dell How Dying Taught Me to Live
cystic fibrosis, News OneLegacy Video Series Promotes Organ, Tissue Donation
cystic fibrosis, News Symdeko and Orkambi Seen to Also Ease Inflammation in CF Patients
cystic fibrosis, News Young CF Patients in UK Receive Machines for At-home Lung Monitoring During Pandemic
cystic fibrosis, News, syndicated Video Games Connect Chronically Ill Children Isolated at Home, Hospital
Columns, Life in the Grey – a Column by Bailey Anne Vincent Has the Face of Cystic Fibrosis Changed Forever?
cystic fibrosis, News Growing Lung Bacteria in Labs May Predict Antibiotics’ Effectiveness More Accurately
cystic fibrosis, News Antibiotic-resistant S. Maltophilia Spread Worldwide, Carry Diverse Genes, Study Reports
cystic fibrosis, News How Trefoil Proteins Act to Thicken Mucus Detailed in Study
Columns, Valiant Voice – a Column by Lara Govendo The Story Behind Awareness
cystic fibrosis, News CF Awareness Month Activities Varied, But Virtual, This Year
cystic fibrosis Phase 1b Study of CB-280 for CF Chronic Lung Infections May Open by September
Columns, Life in the Grey – a Column by Bailey Anne Vincent How to Be Forgotten in 800 Words or Less
Columns, Victorious - a Column by Brad Dell Stuck Between Nostalgia and Reality
cystic fibrosis, News Gene Therapy, KB407, Seen to Restore CFTR Protein in Cell Studies
cystic fibrosis, News Researchers Develop Promising Antibiotic Molecule for Drug-resistant Lung Infections
cystic fibrosis Trikafta Very Effective CF Therapy, But Still Too Costly, ICER Reports
cystic fibrosis, News CF Foundation, Beam Partner to Offer Free Online Exercise Classes
cystic fibrosis AzurRx BioPharma Will Conduct Phase 2b Trial of MS1819 at TDN Clinical Sites
Columns, Life in the Grey – a Column by Bailey Anne Vincent Stop Making Yourself Sick About Other Sick People
cystic fibrosis, News COVID-19 Outcomes in CF Patients Similar to General Public, Study Suggests

August 12, 2020August 12, 2020
Cystic Fibrosis Ireland Establishes Grants for Personal Protective Equipment

Cystic Fibrosis Ireland has set aside up to €120,000 ($141,150) to provide personal protective equipment (PPE) to people with cystic fibrosis (CF) in the ... Read more
August 11, 2020August 6, 2020
Does Everyone With CF Have Body Dysmorphia?

I have gained weight. I’ve been trying to gain weight for years, kindly encouraged by my CF clinic. Many might find it odd that ... Read more
August 11, 2020August 11, 2020
New Streaming Channel Showcases Rare Disease Films

When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated for May, its organizers set out to find a ... Read more
August 11, 2020August 11, 2020
Research May Explain Why Different CF Bacteria Infect at Certain Ages

New research unveils why the bacteria Pseudomonas aeruginosa cause sustained infections in younger cystic fibrosis (CF) patients, while the bacteria Burkholderia cepacia complex infects patients as teenagers ... Read more
August 10, 2020August 10, 2020
CF Foundation Invests $20M to Accelerate CF Programs in Partnership With Longwood Fund

The Cystic Fibrosis Foundation has committed $20 million to support the development of innovative therapeutics and early-stage companies focusing on cystic fibrosis (CF). ... Read more

cystic fibrosis, News

Screening Finds Fewer Newborns in Ireland With CF Than Expected
August 7, 2020August 7, 2020
A national newborn screening (NBS) program in the Republic of Ireland suggests that the ...
cystic fibrosis

ELX-02, Potential Therapy for CF Nonsense Mutations, Named Orphan Drug
August 6, 2020August 6, 2020
ELX-02, an investigational treatment of cystic fibrosis due to nonsense mutations, has been designated an orphan drug ...
cystic fibrosis, News

Scottish Government and Vertex Strike Deal for Access to Kaftrio
August 5, 2020August 5, 2020
The Scottish Government and Vertex Pharmaceuticals have reached a deal to make Vertex’s Kaftrio (ivacaftor/tezacaftor/elexacaftor) ...
Columns, Life in the Grey – a Column by Bailey Anne Vincent

Putting Body Image Issues Behind Me: A #ScarPositive Story
August 4, 2020July 30, 2020
This is my back. My back is old. I’m not old … but my ...
cystic fibrosis, News

Higher Prevalence of Oral Candida Fungus Found in CF Patients
August 4, 2020August 7, 2020
People with cystic fibrosis (CF) are more frequently infected with oral Candida fungus and ...
Columns, Path Unknown - a Column by Wendy Caroline

An Open Letter to the Chronically Ill Professional
August 3, 2020July 31, 2020
Dear Chronically Ill Professional, You are enough. It’s easy to look around and compare ...

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Northern Ireland Reaches Deal With Vertex for Access to Kaftrio
August 3, 2020August 3, 2020
The government of Northern Ireland reached a deal with Vertex Pharmaceuticals to make Kaftrio ...
Real-world Impact of Trikafta Will Be Evaluated in RECOVER Study
July 31, 2020August 3, 2020
A new study will assess the real-world effects of Vertex Pharmaceutical‘s Trikafta, a triple ...
Thread-based Wearable Device May Help Diagnose, Monitor CF and Other Conditions
July 30, 2020July 30, 2020
CFF Impact Grants Go to 4 Online Programs Engaging Patients, Community
July 29, 2020July 31, 2020
Diagnosis Privilege Can Be a Form of Discrimination
July 28, 2020July 24, 2020
CF Canada Honors thyssenkrupp Elevator Canada with National Champion Award
July 28, 2020July 28, 2020

AzurRx Begins Phase 2b Trial Testing MS1819 for Pancreatic Insufficiency in CF Patients
July 27, 2020July 27, 2020
AzurRx BioPharma has launched a Phase 2b clinical trial investigating its MS1819 as a ...
Plan A Didn’t Work — Now What?
July 24, 2020July 23, 2020
CF Patients in Wales Will Have Access to Kaftrio Under New Deal
July 24, 2020July 24, 2020
ContraFect Given Up to $18.9M to Advance CF-370 for P. aeruginosa Infections
July 23, 2020July 23, 2020

Inflammatory Markers May Help Predict Exacerbations in Children with CF
July 22, 2020July 29, 2020
Levels of inflammatory markers in the lungs may help predict pulmonary exacerbations in children ...
Why Am I So Ashamed of Chronic Pain?
July 21, 2020July 27, 2020
Clinical Trial Data Support Efficacy of Trikafta in People with One F508del Mutation and One Other Mutation
July 21, 2020July 21, 2020

cystic fibrosis, News

Urine Marker Could Help in Screening for CF Lung Infections, Study Finds
July 20, 2020August 4, 2020
Measuring levels of a molecule called lipoarabinomannan, or LAM, in a person’s urine could ...
cystic fibrosis, News

Vav3 Protein Creates ‘Docking Station’ for Bacteria, Leading to Lung Infections, Scientists Discover
July 17, 2020July 17, 2020
Scientists have discovered that Vav3, a protein that is over-produced in the lining of ...
cystic fibrosis, News

New Technology Offers Potential for Faster, More Accurate CF Diagnosis
July 16, 2020July 16, 2020
A new technology could enable faster and more accurate cystic fibrosis (CF) diagnoses by ...
cystic fibrosis, News

Dosing Starts in Trial of Oral Treatment, CB-280, for Chronic Lung Infections
July 15, 2020July 15, 2020
Patient dosing has begun in a Phase 1b trial evaluating Calithera Bioscience’s oral therapy CB-280 for cystic fibrosis ...
Columns, Life in the Grey – a Column by Bailey Anne Vincent

I Need to Give Up on Giving Up
July 14, 2020July 9, 2020
Sometimes I want to give up. This is awful to say and even sillier ...
Columns, Victorious - a Column by Brad Dell

How I Failed to Cheat Death
July 14, 2020July 9, 2020
When feeling hurt or sad, I find my escape in rereading the books of ...
cystic fibrosis, News

Number of Adults With CF Likely to Grow by 28% Over Decade, UK Study Says
July 14, 2020July 14, 2020
The number of adults with cystic fibrosis (CF) living in the U.K. is expected ...
News, syndicated

National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US
July 13, 2020July 13, 2020
The EveryLife Foundation for Rare Diseases has launched a nationwide National Burden of Rare ...
News

NIH Grant Supports Computer Modeling of Bacteria’s Behavior in Mucus
July 13, 2020July 13, 2020
A five-year, $3.2 million grant from the National Institutes of Health (NIH) will fund ...
Columns, Valiant Voice – a Column by Lara Govendo

I Don’t Always Wear the Badge of Bravery
July 10, 2020July 8, 2020
In my previous life (pre-double-lung transplant) I was the bravest I’ve ever been. Before ...
News

Renovion’s ARINA-1 Shows Promise in Clearing Mucus, Cell Study Finds
July 10, 2020July 10, 2020
ARINA-1, a nebulized therapy being developed by Renovion for cystic fibrosis (CF) and other chronic inflammatory ...
News

Rage Biotech Opens With Goal of Treating CF and Similar Lung Diseases
July 9, 2020July 10, 2020
Rage Biotech, a new company building on research done at leading Australian universities, aims to ...
News

Orkambi Benefits CF Patients Across Levels of Lung Health, Study Finds
July 8, 2020July 8, 2020
Orkambi (ivacaftor/lumacaftor) can significantly reduce the number of days people with cystic fibrosis (CF) require ...
Columns, Life in the Grey – a Column by Bailey Anne Vincent

I Don’t Want to Die Because You Don’t Like Masks
July 7, 2020June 30, 2020
Wear a mask for me. The more I see friends post anti-mask passions as ...
News

Common P. aeruginosa Mutations May Lead to Biofilm Growth, Bacterial Persistence, Study Says
July 7, 2020July 7, 2020
The common mutations that cause Pseudomonas aeruginosa to lose their ability to move are ...
cystic fibrosis

Women With CF Use Combined Hormonal Contraceptives More Than Other Methods, Study Reports
July 6, 2020July 6, 2020
Among women of childbearing age with cystic fibrosis (CF), the use of combined hormonal ...
News

NuvoAir Home Monitoring System Bolsters Telemed Use in CF, Survey Finds
July 2, 2020July 2, 2020
Cystic fibrosis (CF) patients who monitored their lung function at home using NuvoAir‘s handheld spirometer and ...
cystic fibrosis, News

NHS, Vertex Strike Deal to Make Kaftrio Available in England
July 1, 2020July 1, 2020
NHS England and Vertex Pharmaceuticals have reached an agreement that will allow access to ...

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Recent CF Posts

Cystic Fibrosis Ireland Establishes Grants for Personal Protective Equipment

August 12, 2020
Does Everyone With CF Have Body Dysmorphia?

August 11, 2020
New Streaming Channel Showcases Rare Disease Films

August 11, 2020

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Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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