I’m Grateful for the Journey That Led to My Service Dog
I entered through the hospital doors and walked about 30 feet before becoming completely out of breath. I had a split second of panic ... Read more
Updates
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Preventing the Spread of Misinformation
A few weeks ago, an article with the headline, “Vertex sinks on reports of deaths of patients taking cystic fibrosis drug,” circulated online. The ... Read more -
UNITY Prenatal Blood Test Accurate at Diagnosing CF, Other Hereditary Diseases, Study Shows
The UNITY prenatal test is highly sensitive and accurate for detecting hereditary diseases such as cystic fibrosis (CF), spinal muscular atrophy (SMA), sickle cell ... Read more -
Viral Respiratory Tract Infections in Young CF Children Usually Mild, Study Found
Viral respiratory tract infections in young children with cystic fibrosis tend to be mild and not require hospitalization, a study found. Infections caused by ... Read more -
FDA Designates Vast’s BIOC11 a Qualified Infectious Disease Product
The U.S. Food and Drug Administration (FDA) has designated Vast Therapeutics’ BIOC11 a Qualified Infectious Disease Product (QIDP) for the treatment of people with cystic ... Read more
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Scientists Hope They Have Discovered New Form of CF Therapy
Scientists have discovered a new way to treat cystic fibrosis (CF) that involves delivering ... -
Sorry Not Sorry That I’m Sick
I’m sorry. I’m sorry for being sorry. Do you ever feel like all you ... -
Experts Highlight Obstacles in Delivering New CF Therapies
Care for cystic fibrosis (CF) has improved substantially in recent decades, but there are ... -
Debunking the Myths About Vaccine Safety
I dislike making other people feel uncomfortable. Turning a light-hearted conversation into a heavy ... -
5,000 Expected to Attend Cystic Fibrosis Conference, NACFC 2019, in Nashville
The Western Hemisphere’s largest gathering of experts in cystic fibrosis gets underway later this ... -
Patient-derived Mini-organs Work as ‘Avatars’ to Test CF Treatments
Researchers in Australia are growing mini gut and lung “avatars” derived from cells of ...
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