Cystic Fibrosis Treatment, Therapy and New Medications & Drug

September 25, 2017September 24, 2017
Struggling to Let Others In
Columns, The Patient's Perspective - a column by Reid D'Amico
Cystic fibrosis (CF) is unpredictable. Some days I feel like I can run my fastest personal mile, and on ... Read more
September 25, 2017September 25, 2017
Vizient Awards Alcresta Contract for Relizorb, Which Helps CF Patients Digest Healthy Fats
News
Vizient, which calls itself the nation’s “largest member-driven health care performance improvement company,” has awarded a contract for Alcresta’s ... Read more
September 22, 2017September 22, 2017
TV-Radio Personality Riki Rachtman Completes Solo Motorcycle Ride to Raise Money for CF Kids
cystic fibrosis, News
Two months and 13,456 miles after TV and radio host Riki Rachtman committed to a solo motorcycle journey through ... Read more
September 21, 2017September 21, 2017
CF Foundation Affiliate Awards $3M to Advance Gene Therapy Candidate to Trials
cystic fibrosis, News
4D Molecular Therapeutics (4DMT) announced it has secured funding to complete studies necessary for its gene therapy candidate for ... Read more
September 20, 2017September 20, 2017
CF Patient, Recovering from Double Transplant, Inspires ‘Lunges4Lungs’ Fundraiser
News
The lunges keep coming for Lunges4Lungs, even as Mallory Smith recovers from the double lung transplant she has ... Read more
September 20, 2017September 20, 2017
Antibiotic Iclaprim Granted FDA Orphan Drug Status for CF Lung Infections
cystic fibrosis, News
The U.S. Food and Drug Administration (FDA) granted orphan drug status to a broad spectrum antibiotic called iclaprim, developed by Motif ... Read more
September 19, 2017September 19, 2017
Low-dose Nitric Oxide Enhances Antibiotic Treatment of Certain Chronic CF Infections
cystic fibrosis, News
Nitric oxide (NO) inhalation can enhance the antibiotic treatment of Pseudomonas aeruginosa biofilm infections in cystic fibrosis (CF) ... Read more
September 19, 2017September 19, 2017
Perspective Sits in Places: Overcoming My Trauma
Columns, Victorious - a Column by Brad Dell
Many label their lives with cystic fibrosis a “battle.” I prefer “war.”* There’s the daily grind: The clinic visits are ... Read more
September 18, 2017September 15, 2017
Allergan and Zenpep Rumors: Researching the Truth
Columns, The Patient's Perspective - a column by Reid D'Amico
In August, Allergan pharmaceuticals announced in a letter to healthcare professionals that it would be restructuring its sales force ... Read more
September 18, 2017September 18, 2017
AIT Therapeutics’ Nitric Oxide Therapy Counters Two Patients’ Drug-resistant Bacteria
cystic fibrosis, News
A nitric oxide therapy that AIT Therapeutics‘ is developing to treat respiratory diseases eradicated a drug-resistant bacteria in one ... Read more
September 15, 2017September 15, 2017
AbbVie Marks 25th Annual CF Scholarship Program with Three $25,000 Grants and New Award Category
cystic fibrosis, News
AbbVie is awarding three $25,000 scholarships this year to mark the 25th anniversary of its CF Scholarship Program, and is ... Read more
September 14, 2017September 13, 2017
Proving Yourself Wrong
Columns, Note Taken - a Column by Hannah Buck
There’s a certain amount of pride that often accompanies the proving of one’s own capability. In other words, exceeding ... Read more

September 25, 2017September 24, 2017

Struggling to Let Others In

Columns, The Patient's Perspective - a column by Reid D'Amico

Cystic fibrosis (CF) is unpredictable. Some days I feel like I can run my fastest personal mile, and on others I feel like I’m staring at the treadmill waiting ... Read more

September 25, 2017September 25, 2017

Vizient Awards Alcresta Contract for Relizorb, Which Helps CF Patients Digest Healthy Fats

News

Vizient, which calls itself the nation’s “largest member-driven health care performance improvement company,” has awarded a contract for Alcresta’s Relizorb — a product that helps with the digestion of healthy ... Read more

September 22, 2017September 22, 2017

TV-Radio Personality Riki Rachtman Completes Solo Motorcycle Ride to Raise Money for CF Kids

cystic fibrosis, News

Two months and 13,456 miles after TV and radio host Riki Rachtman committed to a solo motorcycle journey through all 48 contiguous states, the TV and radio host has ... Read more

September 21, 2017September 21, 2017

CF Foundation Affiliate Awards $3M to Advance Gene Therapy Candidate to Trials

cystic fibrosis, News

4D Molecular Therapeutics (4DMT) announced it has secured funding to complete studies necessary for its gene therapy candidate for cystic fibrosis (CF), 4D-710, to be tested in people. The therapy ... Read more

September 20, 2017September 20, 2017

CF Patient, Recovering from Double Transplant, Inspires ‘Lunges4Lungs’ Fundraiser

News

The lunges keep coming for Lunges4Lungs, even as Mallory Smith recovers from the double lung transplant she has received to help extend her life. Friends of Smith started the ... Read more

September 20, 2017September 20, 2017

Antibiotic Iclaprim Granted FDA Orphan Drug Status for CF Lung Infections

cystic fibrosis, News

The U.S. Food and Drug Administration (FDA) granted orphan drug status to a broad spectrum antibiotic called iclaprim, developed by Motif Bio, for the treatment of one of the most common ... Read more

September 19, 2017September 19, 2017

Low-dose Nitric Oxide Enhances Antibiotic Treatment of Certain Chronic CF Infections

cystic fibrosis, News

Nitric oxide (NO) inhalation can enhance the antibiotic treatment of Pseudomonas aeruginosa biofilm infections in cystic fibrosis (CF) patients, a small proof-of-concept clinical trial demonstrated. Bacterial infections by P. aeruginosa is a ... Read more

September 19, 2017September 19, 2017

Perspective Sits in Places: Overcoming My Trauma

Columns, Victorious - a Column by Brad Dell

Many label their lives with cystic fibrosis a “battle.” I prefer “war.”* There’s the daily grind: The clinic visits are strategic meetings. The treatments are patrols. The two-week antibiotic courses ... Read more

September 18, 2017September 15, 2017

Allergan and Zenpep Rumors: Researching the Truth

Columns, The Patient's Perspective - a column by Reid D'Amico

In August, Allergan pharmaceuticals announced in a letter to healthcare professionals that it would be restructuring its sales force to align with the “evolving needs of our broad product ... Read more

September 18, 2017September 18, 2017

AIT Therapeutics’ Nitric Oxide Therapy Counters Two Patients’ Drug-resistant Bacteria

cystic fibrosis, News

A nitric oxide therapy that AIT Therapeutics‘ is developing to treat respiratory diseases eradicated a drug-resistant bacteria in one cystic fibrosis patient and reduced it in another, according to a ... Read more

September 15, 2017September 15, 2017

AbbVie Marks 25th Annual CF Scholarship Program with Three $25,000 Grants and New Award Category

cystic fibrosis, News

AbbVie is awarding three $25,000 scholarships this year to mark the 25th anniversary of its CF Scholarship Program, and is creating a new Blogger’s Choice Award category. AbbVie selected 40 ... Read more

September 14, 2017September 13, 2017

Proving Yourself Wrong

Columns, Note Taken - a Column by Hannah Buck

There’s a certain amount of pride that often accompanies the proving of one’s own capability. In other words, exceeding someone’s expectations is literally the best. Sometimes, the “someone” you’re ... Read more