Cystic Fibrosis Treatment, Therapy and New Medications & Drug

June 22, 2018June 22, 2018
Vertex Opens State-of-the-Art Research Facility in San Diego
cystic fibrosis, News
Vertex Pharmaceuticals announced the opening of a 170,000-square-foot research facility in San Diego, representing a significant expansion of its ... Read more
June 21, 2018June 20, 2018
On Headaches and Not Being Fixable
Columns, Note Taken - a Column by Hannah Buck
I’ve had headaches since I was 10. Debilitating, eye-crushing, every-bone-in-my-face-feels-like-it’s-been-smashed-with-a-baseball-bat headaches. Depending on what doctor you ask, they either ... Read more
June 21, 2018June 21, 2018
Pancreatic Cell Transplant Program Offers New Hope to Some CF Patients
cystic fibrosis, News
The University of North Carolina (UNC) is among only a few institutions in the United States that offers patients with ... Read more
June 20, 2018June 19, 2018
Tidying Tips for Low-energy Days
Columns, Modern CF Mama - a Column by Janeil Whitworth
We all have those days with CF when the coughing is nonstop and the energy has fizzled long before ... Read more
June 20, 2018June 20, 2018
#ECFS2018 – Phase 2 Trial Supporting SPX-101 as Treatment for All with CF, Spyryx CMO Says
cystic fibrosis, News
SPX-101, designed to help clear mucus from the lungs of people with cystic fibrosis, has the potential to treat all ... Read more
June 19, 2018June 18, 2018
My Thoughts on the European Cystic Fibrosis Conference (ECFS 2018)
Columns, Victorious - a Column by Brad Dell
After 37 hours of travel, I landed in Belgrade, Serbia. I hopped in a cab and rolled past rows ... Read more
June 19, 2018June 19, 2018
WVU Medicine Granted CFF Accreditation for its Adult Cystic Fibrosis Program
cystic fibrosis, News
The Adult Cystic Fibrosis Program at West Virginia University Medicine’s Mountain State Cystic Fibrosis Center was recently awarded accreditation from the Cystic ... Read more
June 18, 2018June 15, 2018
Progression, Personality, and Perseverance
Columns, Path Unknown - a Column by Wendy Caroline
Cystic fibrosis has slowly, but surely, been creeping and nosing into parts of my life previously untouched. Just the ... Read more
June 18, 2018June 18, 2018
#ECFS2018 — Can Remote Monitoring Really Revolutionize Cystic Fibrosis Care?
cystic fibrosis, News
Some 318,000 health-related software apps are now on the market, with another 200 appearing every day. Yet a British ... Read more
June 18, 2018June 18, 2018
Vertex Employees Donate $1M to CF and Other Communities via Matching Gift Program
cystic fibrosis, News
Vertex Pharmaceuticals employees have raised more million $1 million using the Vertex Foundation‘s matching gift program in a show of commitment to ... Read more
June 15, 2018June 15, 2018
Orkambi, Symdeko and Kalydeco All of Benefit, But Too Costly Be of Good Value to Patients, Midwest CEPAC Says
cystic fibrosis, News
Vertex Pharmaceuticals’ treatments for cystic fibrosis (CF) all provide considerable benefits, but their pricing is not transparent and ... Read more
June 14, 2018June 14, 2018
Understanding How Bacteria ‘Talk’ Could Hold Key for New CF Treatments, Study Suggests
News
New research provides insights into how bacteria “talk” to each other in lung infections, which could provide strategies to ... Read more

June 22, 2018June 22, 2018

Vertex Opens State-of-the-Art Research Facility in San Diego

cystic fibrosis, News

Vertex Pharmaceuticals announced the opening of a 170,000-square-foot research facility in San Diego, representing a significant expansion of its research presence in the area. The San Diego site is ... Read more

June 21, 2018June 20, 2018

On Headaches and Not Being Fixable

Columns, Note Taken - a Column by Hannah Buck

I’ve had headaches since I was 10. Debilitating, eye-crushing, every-bone-in-my-face-feels-like-it’s-been-smashed-with-a-baseball-bat headaches. Depending on what doctor you ask, they either can or cannot be classified as migraines. (Well, depending on ... Read more

June 21, 2018June 21, 2018

Pancreatic Cell Transplant Program Offers New Hope to Some CF Patients

cystic fibrosis, News

The University of North Carolina (UNC) is among only a few institutions in the United States that offers patients with inflamed pancreas (pancreatitis) or pancreatic cystosis a surgical treatment option ... Read more

June 20, 2018June 19, 2018

Tidying Tips for Low-energy Days

Columns, Modern CF Mama - a Column by Janeil Whitworth

We all have those days with CF when the coughing is nonstop and the energy has fizzled long before the clock sounds noon. Unfortunately, low-energy days don’t magically retract ... Read more

June 20, 2018June 20, 2018

#ECFS2018 – Phase 2 Trial Supporting SPX-101 as Treatment for All with CF, Spyryx CMO Says

cystic fibrosis, News

SPX-101, designed to help clear mucus from the lungs of people with cystic fibrosis, has the potential to treat all CF patients — regardless of disease-causing mutations. The experimental peptide, which ... Read more

June 19, 2018June 18, 2018

My Thoughts on the European Cystic Fibrosis Conference (ECFS 2018)

Columns, Victorious - a Column by Brad Dell

After 37 hours of travel, I landed in Belgrade, Serbia. I hopped in a cab and rolled past rows of rusted relics — airplanes of various centuries, including the ... Read more

June 19, 2018June 19, 2018

WVU Medicine Granted CFF Accreditation for its Adult Cystic Fibrosis Program

cystic fibrosis, News

The Adult Cystic Fibrosis Program at West Virginia University Medicine’s Mountain State Cystic Fibrosis Center was recently awarded accreditation from the Cystic Fibrosis Foundation (CFF) for its work in the cystic fibrosis (CF) community. ... Read more

June 18, 2018June 15, 2018

Progression, Personality, and Perseverance

Columns, Path Unknown - a Column by Wendy Caroline

Cystic fibrosis has slowly, but surely, been creeping and nosing into parts of my life previously untouched. Just the other day I was watching a morning routine video on ... Read more

June 18, 2018June 18, 2018

#ECFS2018 — Can Remote Monitoring Really Revolutionize Cystic Fibrosis Care?

cystic fibrosis, News

Some 318,000 health-related software apps are now on the market, with another 200 appearing every day. Yet a British cystic fibrosis expert questions how effective they are at managing lung ... Read more

June 18, 2018June 18, 2018

Vertex Employees Donate $1M to CF and Other Communities via Matching Gift Program

cystic fibrosis, News

Vertex Pharmaceuticals employees have raised more million $1 million using the Vertex Foundation‘s matching gift program in a show of commitment to causes that include the cystic fibrosis (CF) community, a company press ... Read more

June 15, 2018June 15, 2018

Orkambi, Symdeko and Kalydeco All of Benefit, But Too Costly Be of Good Value to Patients, Midwest CEPAC Says

cystic fibrosis, News

Vertex Pharmaceuticals’ treatments for cystic fibrosis (CF) all provide considerable benefits, but their pricing is not transparent and does not align with the medications clinical value, a review of ... Read more

June 14, 2018June 14, 2018

Understanding How Bacteria ‘Talk’ Could Hold Key for New CF Treatments, Study Suggests

News

New research provides insights into how bacteria “talk” to each other in lung infections, which could provide strategies to block these signals and ease bacterial virulence in patients with ... Read more

Vertex Opens State-of-the-Art Research Facility in San Diego

On Headaches and Not Being Fixable

Pancreatic Cell Transplant Program Offers New Hope to Some CF Patients

Tidying Tips for Low-energy Days

#ECFS2018 – Phase 2 Trial Supporting SPX-101 as Treatment for All with CF, Spyryx CMO Says

My Thoughts on the European Cystic Fibrosis Conference (ECFS 2018)

WVU Medicine Granted CFF Accreditation for its Adult Cystic Fibrosis Program

Progression, Personality, and Perseverance

#ECFS2018 — Can Remote Monitoring Really Revolutionize Cystic Fibrosis Care?

Vertex Employees Donate $1M to CF and Other Communities via Matching Gift Program

Orkambi, Symdeko and Kalydeco All of Benefit, But Too Costly Be of Good Value to Patients, Midwest CEPAC Says

Understanding How Bacteria ‘Talk’ Could Hold Key for New CF Treatments, Study Suggests

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