cystic fibrosis, News Patients Adhere Well to CFTR Therapies But High Costs Could Undermine Use, Pharmacy Study Says

cystic fibrosis, News Vertex Reaches Agreement for CF Medications in Northern Ireland and Wales

cystic fibrosis, News Rare Disease Film Festival Highlights Patient and Researcher Unity

Columns, Life in the Grey: a Column by Bailey Anne Vincent Inspiration for Hire: Sick Candidates Only

cystic fibrosis, News Proteostasis Therapeutics Completes Enrollment in Phase 2 Study Testing Triple Combination Therapy in Cystic Fibrosis

cystic fibrosis, News Latinos on 2 Caribbean Islands Carry CFTR Mutations Seen in 1% of CF Patients Elsewhere, Study Says

Becoming Visible by Elizabeth Rogers, Columns Addressing the Issues that Trikafta Benefits Will Bring

News Bionic Pancreas May Be Useful in Managing Blood Sugar Levels in Adults with CFRD, Small Study Says

cystic fibrosis, News Eloxx Presents Positive Preclinical and Clinical Data of CF Therapy Candidate ELX-02

cystic fibrosis, News Preclinical Data Supports Effectiveness of ARO-ENaC, Arrowhead’s Investigational Therapy for CF

cystic fibrosis, News Two New CFTR Gene Variants Identified in Young CF Patients, Study Reports

Columns, Mutations & Conversations - a Column by Tré LaRosa What We Should Expect from the CF Foundation’s ‘Path to a Cure’

cystic fibrosis, News Arrevus Gets Support from NC Biotech Center to Advance ARV-1801 for Pulmonary Exacerbations in CF

cystic fibrosis, News European Regulators Take Step Toward Possible Approval of Vertex’s New Combo Therapy for 90% of CF Patients

cystic fibrosis, News $15M Donation to Support CF Research Program at University of Queensland

cystic fibrosis Trikafta’s Approval the Outcome of ‘20-year Journey That Started with a Dream’, Says Vertex CEO Jeffrey Leiden

Columns, Life in the Grey: a Column by Bailey Anne Vincent What to Do When Everyone Dies

Columns, Victorious - a Column by Brad Dell The Present Realizes the Past Through Travel

cystic fibrosis, News Alaxia Joins iABC to Speed Development of ALX-009, Potential Antibiotic for Resistant Lung Infections

Columns, Mutations & Conversations - a Column by Tré LaRosa Giving My Anxiety a Name

cystic fibrosis, News Vertex, NHS England Reach Agreement on Pricing and Public Availability of CF Treatments

News CF Patients Voice Hopes and Expectations for Trikafta in Instagram Poll

cystic fibrosis, News CF Mutation Carriers Have Increased Risk for Gastrointestinal Problems, Large-scale Study Finds

cystic fibrosis, News Cystic Fibrosis Foundation Applauds FDA Approval of Trikafta

cystic fibrosis, News Europe’s CHMP Issues Positive Opinion on Kalydeco Use in Infants

Columns, Life in the Grey: a Column by Bailey Anne Vincent Sick Food Diaries: A Day In the Life

cystic fibrosis, News FDA Approves Trikafta, 1st Vertex Triple Combo with Potential to Treat 90% of CF Patients

cystic fibrosis, News 1st Patient Enrolled in Phase 2 Study of Inhalation Treatment for All with CF, Boehringer Says

cystic fibrosis, News First Patients Dosed in Trial Testing MS1819-SD Plus PERT for CF-related Severe EPI, AzurRX Says

cystic fibrosis, News Regular Exercise Promotes Lung Health in CF by Lowering Adiponectin Levels, Study Suggests

cystic fibrosis, News Chelsea Financial Services Supporting Boomer Esiason Foundation, CF Research at NYC Marathon

Columns, Victorious - a Column by Brad Dell The Art of Not Helping

cystic fibrosis, News Orkambi of Definite Benefit But Risk Evident in Patients Who Can’t Tolerate It, French Study Finds

Columns, Path Unknown - a Column by Wendy Caroline I’m Grateful for the Journey That Led to My Service Dog

Columns, Mutations & Conversations - a Column by Tré LaRosa Preventing the Spread of Misinformation

cystic fibrosis, News UNITY Prenatal Blood Test Accurate at Diagnosing CF, Other Hereditary Diseases, Study Shows

cystic fibrosis, News Viral Respiratory Tract Infections in Young CF Children Usually Mild, Study Found

cystic fibrosis, News FDA Designates Vast’s BIOC11 a Qualified Infectious Disease Product

cystic fibrosis, News Scientists Hope They Have Discovered New Form of CF Therapy

Columns, Life in the Grey: a Column by Bailey Anne Vincent Sorry Not Sorry That I’m Sick

cystic fibrosis Experts Highlight Obstacles in Delivering New CF Therapies

Columns, Mutations & Conversations - a Column by Tré LaRosa Debunking the Myths About Vaccine Safety

cystic fibrosis, News 5,000 Expected to Attend Cystic Fibrosis Conference, NACFC 2019, in Nashville

cystic fibrosis Patient-derived Mini-organs Work as ‘Avatars’ to Test CF Treatments

cystic fibrosis, News Vertex Partners with Ribometrix to Discover RNA-targeted Therapies

cystic fibrosis, News Hexoskin Smart Shirt Can Accurately Assess Respiratory Function, May Be Tool in CF, Study Shows

Columns, Life in the Grey: a Column by Bailey Anne Vincent ‘I’m Better at Being Sick Than You Are’: Chronic Illness Is Not a Competition

cystic fibrosis, News IL-1 Receptor Inhibition a Potential Strategy to Block Mucus Build-up in Early CF, Study Suggests

Columns, Mutations & Conversations - a Column by Tré LaRosa An Obstacle on My Chosen Career Path Led to an Identity Crisis

cystic fibrosis, News Public Encouraged to Vote for 2 Students with CF to Receive $22K AbbVie Scholarships

cystic fibrosis, News AzurRx BioPharma Announces Promising Results from Trial Testing MS1819 for EPI in CF Patients

cystic fibrosis, News NORD 2019 Rare Disease Summit Set for Oct. 21-22 in Washington, DC

cystic fibrosis, News Professor Launches Research Initiative to Encourage Students to Develop and Test Antibiotics for CF Infections

cystic fibrosis, News CF Foundation Awards Eloxx $1.61M for Phase 2 Trials in People with Nonsense Mutations

Columns, Life in the Grey: a Column by Bailey Anne Vincent I Want to Break Up with My CF Clinic

cystic fibrosis, News Kalydeco’s Efficacy Tied to Phosphorylation Levels of CFTR Protein, Study Suggests

Columns, Mutations & Conversations - a Column by Tré LaRosa The Benefits and Perils of Social Media

cystic fibrosis, News Physical Activity Levels in CF Should Be Objectively Researched, Review Says

cystic fibrosis, News LCI Is Sensitive Lung Function Parameter in Patients with Mild CF, Study Says

News 1st Biosimilar of Dornase Alfa Inhalation Solution for CF Approved in Russia, Companies Announce

News Progress for Cystic Fibrosis [INFOGRAPHIC]

News Translate Bio Prioritizes Development of CF Therapy MRT5005, Other Lung Disease Candidates

News Prenatal Testing for Cystic Fibrosis Influences Pregnancy Outcomes, Review Finds

Columns, Life in the Grey: a Column by Bailey Anne Vincent Our Colons Need Your Help

Columns, Mutations & Conversations - a Column by Tré LaRosa Reflecting on the First Year of My Column, ‘Mutations & Conversations’

News Armata Announces New Treatment Candidate for P. Aeruginosa Infections in CF Patients

News New Agreement in Scotland Grants CF Patients Access to Orkambi and Symkevi

News Safety, Early Effectiveness of POL6014 Confirmed in Phase 1 Trial

News ICER Seeking Feedback on CF Treatments from Stakeholders

Columns, Life in the Grey: a Column by Bailey Anne Vincent I Don’t Identify with the Word Disabled

cystic fibrosis, News Drexel Study to Look at Tailored ‘Talk’ Therapy in Helping Ease Depression and Anxiety in CF Patients

Columns, Mutations & Conversations - a Column by Tré LaRosa I Spent a Day On Capitol Hill Speaking with Lawmakers About CF and Healthcare

cystic fibrosis, News Tarpon Cellars Uses Wine Sales to Help CF Foundation

cystic fibrosis, News Amikacin Liposome Therapy Has Similar Efficacy as Tobramycin for P. aeruginosa, Study Shows

cystic fibrosis, News Claire’s Place Foundation Glow Ride Will Include Virtual Riders This Year

cystic fibrosis, News Blocking Specific Protein Complex May Treat Chronic P. aeruginosa Infections in CF, Study Suggests

Columns, Life in the Grey: a Column by Bailey Anne Vincent I’m Learning to Celebrate the Imperfect Milestones

Columns, Victorious - a Column by Brad Dell The Kind of Friend We Deserve

News ‘Disorder’ Film Festival Offers Look at Siblings Touched by Rare Diseases

News More CFRD Screening Can Improve Outcome of People with CF, Study Suggests

News A. Fumigatus Fungus Linked to Worse Respiratory Quality of Life in People with CF, Study Finds

News At NY Genome Center, Legal Expert Presents Ethical Dilemmas in Gene Editing

News Young Girl with CF Improves After Pancreas Removal with Cell Transplant, Case Report Says

Columns, Victorious - a Column by Brad Dell Processing My Pain Was Necessary for Me to Heal from Years of Hurt

News MAC Lung Infections Best Treated When Specific Bacterial Species Known, Study Finds

Columns, Life in the Grey: a Column by Bailey Anne Vincent I’m Failing the System and the System Is Failing Me

Columns, Mutations & Conversations - a Column by Tré LaRosa The Resiliency of the Human Spirit

News FDA Grants Priority Review to Vertex’s 1st Triple Combo for CF

Becoming Visible by Elizabeth Rogers, Columns Can We Talk About CF Pain?

News Path BioAnalytics Acquires Cavosonstat From Laurel Therapeutics for Further Study

cystic fibrosis, News Cellular Metabolism Defect May Cause Pseudomonas Lung Infections in CF Patients, Study Says

cystic fibrosis, News Trained Sniffer Dogs Can Detect Key CF Bacteria, Study Shows

Columns, Life in the Grey: a Column by Bailey Anne Vincent I’m Worried Sick About My Family

cystic fibrosis, News S. aureus Bacteria Seen to Lose Resistance to Antibiotics When Combined with Rhamnolipids

Columns, Mutations & Conversations - a Column by Tré LaRosa Why the CF Community Should Be Concerned About Climate Change

cystic fibrosis Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases

cystic fibrosis, News Kalydeco Offers Better Quality of Life, Eased CF Symptoms, Patients Report

Becoming Visible by Elizabeth Rogers, Columns I Can’t Visualize My Video Game Characters Without Cystic Fibrosis

cystic fibrosis, News High Liver Enzyme Levels Linked to Risk of CF-Related Diabetes, Especially in Men, Study Finds

News Citing Costs, Scotland Regulators Reject Adding Orkambi and Symkevi to National Health System