News Prenatal Testing for Cystic Fibrosis Influences Pregnancy Outcomes, Review Finds

Columns, Life in the Grey: a Column by Bailey Anne Vincent Our Colons Need Your Help

Columns, Mutations & Conversations - a Column by Tré LaRosa Reflecting on the First Year of My Column, ‘Mutations & Conversations’

News Armata Announces New Treatment Candidate for P. Aeruginosa Infections in CF Patients

News New Agreement in Scotland Grants CF Patients Access to Orkambi and Symkevi

News Safety, Early Effectiveness of POL6014 Confirmed in Phase 1 Trial

News ICER Seeking Feedback on CF Treatments from Stakeholders

Columns, Life in the Grey: a Column by Bailey Anne Vincent I Don’t Identify with the Word Disabled

cystic fibrosis, News Drexel Study to Look at Tailored ‘Talk’ Therapy in Helping Ease Depression and Anxiety in CF Patients

Columns, Mutations & Conversations - a Column by Tré LaRosa I Spent a Day On Capitol Hill Speaking with Lawmakers About CF and Healthcare

cystic fibrosis, News Tarpon Cellars Uses Wine Sales to Help CF Foundation

cystic fibrosis, News Amikacin Liposome Therapy Has Similar Efficacy as Tobramycin for P. aeruginosa, Study Shows

cystic fibrosis, News Claire’s Place Foundation Glow Ride Will Include Virtual Riders This Year

cystic fibrosis, News Blocking Specific Protein Complex May Treat Chronic P. aeruginosa Infections in CF, Study Suggests

Columns, Life in the Grey: a Column by Bailey Anne Vincent I’m Learning to Celebrate the Imperfect Milestones

Columns, Victorious - a Column by Brad Dell The Kind of Friend We Deserve

News ‘Disorder’ Film Festival Offers Look at Siblings Touched by Rare Diseases

News More CFRD Screening Can Improve Outcome of People with CF, Study Suggests

News A. Fumigatus Fungus Linked to Worse Respiratory Quality of Life in People with CF, Study Finds

News At NY Genome Center, Legal Expert Presents Ethical Dilemmas in Gene Editing

News Young Girl with CF Improves After Pancreas Removal with Cell Transplant, Case Report Says

Columns, Victorious - a Column by Brad Dell Processing My Pain Was Necessary for Me to Heal from Years of Hurt

News MAC Lung Infections Best Treated When Specific Bacterial Species Known, Study Finds

Columns, Life in the Grey: a Column by Bailey Anne Vincent I’m Failing the System and the System Is Failing Me

Columns, Mutations & Conversations - a Column by Tré LaRosa The Resiliency of the Human Spirit

News FDA Grants Priority Review to Vertex’s 1st Triple Combo for CF

Becoming Visible by Elizabeth Rogers, Columns Can We Talk About CF Pain?

News Path BioAnalytics Acquires Cavosonstat From Laurel Therapeutics for Further Study

cystic fibrosis, News Cellular Metabolism Defect May Cause Pseudomonas Lung Infections in CF Patients, Study Says

cystic fibrosis, News Trained Sniffer Dogs Can Detect Key CF Bacteria, Study Shows

Columns, Life in the Grey: a Column by Bailey Anne Vincent I’m Worried Sick About My Family

cystic fibrosis, News S. aureus Bacteria Seen to Lose Resistance to Antibiotics When Combined with Rhamnolipids

Columns, Mutations & Conversations - a Column by Tré LaRosa Why the CF Community Should Be Concerned About Climate Change

cystic fibrosis Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases

cystic fibrosis, News Kalydeco Offers Better Quality of Life, Eased CF Symptoms, Patients Report

Becoming Visible by Elizabeth Rogers, Columns I Can’t Visualize My Video Game Characters Without Cystic Fibrosis

cystic fibrosis, News High Liver Enzyme Levels Linked to Risk of CF-Related Diabetes, Especially in Men, Study Finds

News Citing Costs, Scotland Regulators Reject Adding Orkambi and Symkevi to National Health System

Columns, This Lung Life - a Column by Ella Balasa When Will I Be ‘Sick Enough’ for a Transplant?

cystic fibrosis, News Lungs Grown in Yale Lab Have Potential for Patients with CF, Other Chronic Lung Diseases

Columns, Life in the Grey: a Column by Bailey Anne Vincent Choosing Scars, One Tattoo at a Time

Columns, Victorious - a Column by Brad Dell Clinical Anxiety of an Unexpected Type

cystic fibrosis, News Minimally Invasive Imaging Device Shows Changes in Nasal Airways, May Allow Earlier CF Diagnosis

Columns, Path Unknown - a Column by Wendy Caroline Don’t Just Say I’m an Inspiration, Tell Me Why

Columns, Mutations & Conversations - a Column by Tré LaRosa Our Relationships with Our Doctors Are Stronger When We Self-advocate

cystic fibrosis Gene Editing Tool Corrects CF-causing Mutations in Patient-derived Cells, Study Shows

cystic fibrosis, News ’65_RedRoses’ Event, Tracing Life of Woman with CF, Will Support Transplant Research in Canada

cystic fibrosis, News CF Foundation Earmarks Up to $15M for Arcturus Therapeutics to Advance Experimental RNA Therapy

cystic fibrosis Italfarmaco, Neupharma Partner to Develop Inhaled Form of Teicoplanin to Treat CF Lung Infections

Columns, Life in the Grey: a Column by Bailey Anne Vincent Healthcare Could Use the Kinesthetic Empathy of Dance

cystic fibrosis Eloxx Pharmaceuticals Will Launch Phase 2 ELX-02 Trial for CF Patients Carrying G542X Mutation

Columns, Mutations & Conversations - a Column by Tré LaRosa Is There an Upper Limit to the Improvements That CFTR Modulators Can Provide?

cystic fibrosis, News Translate Bio’s MRT5005 May Improve Lung Function With a Single Dose, Interim Trial Data Shows

cystic fibrosis, News Long-term Treatment with Kalydeco Decreases Risk of Lung Infection, Study Reports

News Rare Disease Groups Seek Public Support to Renew Newborn Screening Act in Senate

Columns, Work that Works - a Column by Elly Aylwin-Foster Let’s Talk About Money: Dollars and Disabilities in the Workplace

cystic fibrosis Oklahoma Ranks Lowest on Programs Key to Rare Diseases on NORD’s 2019 State Report Card

cystic fibrosis, News Using Nebulizer While Lying on Alternating Sides Can Better Deposit Therapy Across Lungs, Trial Finds

cystic fibrosis, News Development Bank of Wales Raises Funds for UK’s Cystic Fibrosis Trust

Columns, Life in the Grey: a Column by Bailey Anne Vincent Do You Feel What I Feel?

cystic fibrosis, News Proteostasis Begins Dosing in Phase 2 Trial of 3 CF Investigational Therapies

Columns, Path Unknown - a Column by Wendy Caroline I Am Not a Morning Person

Columns, Mutations & Conversations - a Column by Tré LaRosa The Long-term Effect of Disability Language

cystic fibrosis, News Vertex Names Reshma Kewalramani to Succeed Leiden as CEO, Advance Therapies to 90% of CF Patients

Becoming Visible by Elizabeth Rogers, Columns Accepting the Bumps in the Road

cystic fibrosis, News Arts, Education, Song, and Advocacy Programs Awarded 2019 Impact Grants by CFF

Columns, Work that Works - a Column by Elly Aylwin-Foster Use Me for Something Good

cystic fibrosis, News Mylan Given Rights to Market TOBI Solution and TOBI Podhaler in UK

cystic fibrosis, News AR-501 Named Orphan Drug in EU as Possible Treatment for Chronic Lung Infections in CF

Columns, Life in the Grey: a Column by Bailey Anne Vincent Chronic Bullying Is the Worst Sickness of All

cystic fibrosis, News Vertex Asks FDA to Approve 1st Triple Combo for CF – Elexacaftor, Tezacaftor and Kalydeco

Columns, Mutations & Conversations - a Column by Tré LaRosa ‘Everything’ Will Never Be Perfect, and That’s OK

cystic fibrosis, News Kalydeco’s Safety and Benefits Studied in CF Patients with Severe Lung Disease

News NIH $150,000 Grant to Support Research into Preserving Fertility in Women Prior to Lung Transplant

Columns, Work that Works - a Column by Elly Aylwin-Foster How Much CF Do You Choose to Show?

cystic fibrosis European Initiative Targets Diagnosis, Treatment of Rare Diseases

cystic fibrosis, News Pancreas-on-a-chip Expected to Shed Light, Help Find New Treatments for CF-related Diabetes

cystic fibrosis, News Pregnancy in CF Women With Poor Lung Function Not Linked to Pulmonary Decline, Study Shows

Columns, Life in the Grey: a Column by Bailey Anne Vincent An Open Apology to the Guy Who Married the Sick Girl

Columns, Victorious - a Column by Brad Dell We Don’t Get Used to Disease, So We Still Need Your Support

cystic fibrosis, News NIH $2.3M Grant to Help Develop Nanoparticle Therapy for Muscle- and Weight-wasting Disorder

Columns, Mutations & Conversations - a Column by Tré LaRosa Transforming Adversity into Progress

cystic fibrosis, News Babies Treated with Synagis Show No Lasting Benefits in Lung Health as 7-Year-Olds, Real-world Study Finds

cystic fibrosis, News Different CFTR Potentiators Bind to Same Flexible Spot on Protein, Study Finds

Columns, Work that Works - a Column by Elly Aylwin-Foster What Does It Mean to Be a Patient?

cystic fibrosis, News Eluforsen Improves CFTR Function in Cellular and Animal Models of CF, Study Says

cystic fibrosis, News AzurRx BioPharma Launches Phase 2 Trial Testing MS1819-SD Combined With PERT for EPI

Columns, Life in the Grey: a Column by Bailey Anne Vincent Medicine Is Splitting Me into Pieces

Columns, Victorious - a Column by Brad Dell Why Rare Disease Communities Must Stand United

cystic fibrosis, News Modified and More Rigorous Cleansing Procedure May Better Prepare CF Patients for Colonoscopy, Study Says

Columns, Mutations & Conversations - a Column by Tré LaRosa Is it Ethical to Have Another Child Once You’ve Had One with CF?

cystic fibrosis, News IMPACT-breath Study Explores Non-invasive Diagnosis of Pseudomonas Aeruginosa Lung Infections in CF Patients

cystic fibrosis World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients

cystic fibrosis, News Adding CF-specific Variables More Accurately Prioritizes Patients on Lung Transplant Waitlist, Study Says

Columns, Life in the Grey: a Column by Bailey Anne Vincent I Need Help Asking for Help

cystic fibrosis, News BillionToOne Announces Launch of UNITY Prenatal Screen

Columns, Mutations & Conversations - a Column by Tré LaRosa Finding My CF Community Has Restored My Sense of Belonging

News FDA Grants Orphan Drug Status to AR-501, Potential CF Treatment for Chronic Lung Infections

News Children’s Book ‘Our Baby has Sixty-Five Roses’ Launched by CF Parent

Columns, Work that Works - a Column by Elly Aylwin-Foster From Boom to Bust: Managing Work with CF