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cystic fibrosis, News Study Compares Oral and Intravenous Antibiotics for P. aeruginosa Infections in People With CF
cystic fibrosis, News Study: Screening for Hearing Loss in CF Patients Feasible With Tablet-based Tests
Columns, Life in the Grey – a Column by Bailey Anne Vincent Restoring Humanity to the Statistics of Illness
Columns, Victorious - a Column by Brad Dell The Necessities of a Funeral
cystic fibrosis, News Potential Gene Therapy, SPIRO-2101, Named Rare Pediatric and Orphan Disease by FDA
Columns, Mutations & Conversations - a Column by Tré LaRosa Time Contracts Near Tragedy
cystic fibrosis, News FDA Approves CF Treatment Kalydeco for Infants as Young as 4 Months
Columns, Valiant Voice – a Column by Lara Govendo What to Do When Depression Strikes
cystic fibrosis, News Emily’s Entourage Awards $790K to Support Work on CF Therapeutics
cystic fibrosis, News GI Problems Common and ‘Intrude’ on Daily Life, CF Survey Finds
cystic fibrosis Antibody Evident in Airways of CF Patients Tied to P. aeruginosa Colonization
Columns, Life in the Grey – a Column by Bailey Anne Vincent I Am Not Your Sick Savior, and Here’s Why
cystic fibrosis, News Public Invited to Vote on 2020 AbbVie CF Scholarship Awards
cystic fibrosis, News EU’s CHMP Backs Kalydeco, Symkevi License Extension for Use in Younger Children
cystic fibrosis, News Moderna, Vertex Team Up to Develop Gene-editing Delivery Techniques
cystic fibrosis, News For 7th Year, Bike 2 Breathe Hits Roads in Support of Those With CF
News Case Report Describes Unconventional Method for Delivering PERT in Premature CF Baby
Columns, Life in the Grey – a Column by Bailey Anne Vincent I’m Having Surgery (and Other Clickbait Headlines)
Columns, Victorious - a Column by Brad Dell Have Our Backs and Push Against Ableism With Us
cystic fibrosis, News EMA Validates Application Seeking Expansion of Kaftrio Approval
cystic fibrosis, News Vertex to Seek Expanded FDA Approval for Trikafta After Positive Child Safety Data
Columns, Valiant Voice – a Column by Lara Govendo How to Keep Your Growth Game Strong
cystic fibrosis, News Aridis, FDA Agree to Simplify AR-501 Trial Design Based on Positive Safety Data
cystic fibrosis, News Savara Closing Trial of Molgradex in Treating NTM Lung Infections in CF Patients
Columns, Life in the Grey – a Column by Bailey Anne Vincent Listening to Both Sides of the Mask Debate
News $10M Grants Will Fund New Research Seeking to Improve Transplant Outcomes
cystic fibrosis, News CF Patients With Poorer Lung Function at Greater Risk of Premature or Smaller Baby, Study Shows
cystic fibrosis, News New Technology Could Improve Detection of Biomarkers for CF, Other Diseases
cystic fibrosis, News Vertex Seeks to Expand FDA Approval of CFTR Modulators to Include More Mutations
Columns, Life in the Grey – a Column by Bailey Anne Vincent Advance Directives, Legacy, and Worrying Myself Sick
Columns, Victorious - a Column by Brad Dell Interventional Treatment for My Social Sickness
cystic fibrosis, News CFF Funding Will Further ContraFect’s Research Into Alternative for Antibiotics
cystic fibrosis, News, syndicated Same But Different Photo Contest Celebrates People With Rare Diseases
cystic fibrosis, News UK Registry Finds CF Community Living Longer, Becoming More Diverse
Columns, Valiant Voice – a Column by Lara Govendo Transplant Anniversaries Acknowledge Trauma and Triumph
cystic fibrosis, News Trikafta’s Arrival in Canada Could Cut CF Deaths by 15% Over 10 Years, Study Suggests
cystic fibrosis, News Proteostasis Therapeutics Merges With Yumanity Therapeutics
cystic fibrosis, News CF Foundation Awards Nearly $15 Million to Groups Researching Infections and CF
Columns, Life in the Grey – a Column by Bailey Anne Vincent A New Way to Hurt: Are You ‘Healthist’?
cystic fibrosis, News Muscles of CF Youth Consume Oxygen Faster Than Peers, Affecting Exercise
cystic fibrosis, News Vertex Triple Combo, Kaftrio, Approved for CF Patients in EU With F508del Mutation
cystic fibrosis, News NuvoAir Home Platform Classified as Class Im Medical Device
cystic fibrosis, News FDA Grants Orphan Drug Designation to KB407, Potential Gene Therapy for CF
cystic fibrosis Dosing Begins in Phase 1 Trial of ETD002, Potential CF Inhalation Therapy
Columns, Life in the Grey – a Column by Bailey Anne Vincent The Painful Truth About Being a Sick Parent
Columns, Victorious - a Column by Brad Dell How to Gain Weight: 7 Less Traditional Methods
cystic fibrosis, News Work Proudly Program to Help 15 CF Patients or Caregivers Find Flexible Jobs
cystic fibrosis, News First Patients Enrolled in Phase 2b Trial Testing MS1819 for Exocrine Pancreatic Insufficiency in CF
Columns, Valiant Voice – a Column by Lara Govendo A Giant Win After a Big Loss
News MS1819-PERT Combo Shows Benefits for CF Patients With EPI in Phase 2 Trial
cystic fibrosis, News First Participants Dosed in Early Clinical Trial of Inhaled Therapy ARO-ENaC
cystic fibrosis, News Cystic Fibrosis Ireland Establishes Grants for Personal Protective Equipment
Columns, Life in the Grey – a Column by Bailey Anne Vincent Does Everyone With CF Have Body Dysmorphia?
cystic fibrosis, News Research May Explain Why Different CF Bacteria Infect at Certain Ages
cystic fibrosis, News CF Foundation Invests $20M to Accelerate CF Programs in Partnership With Longwood Fund
cystic fibrosis, News Screening Finds Fewer Newborns in Ireland With CF Than Expected
cystic fibrosis ELX-02, Potential Therapy for CF Nonsense Mutations, Named Orphan Drug
cystic fibrosis, News Scottish Government and Vertex Strike Deal for Access to Kaftrio
Columns, Life in the Grey – a Column by Bailey Anne Vincent Putting Body Image Issues Behind Me: A #ScarPositive Story
cystic fibrosis, News Higher Prevalence of Oral Candida Fungus Found in CF Patients
Columns, Path Unknown - a Column by Wendy Caroline An Open Letter to the Chronically Ill Professional
cystic fibrosis, News Northern Ireland Reaches Deal With Vertex for Access to Kaftrio
cystic fibrosis, News Real-world Impact of Trikafta Will Be Evaluated in RECOVER Study
cystic fibrosis, News Thread-based Wearable Device May Help Diagnose, Monitor CF and Other Conditions
cystic fibrosis, News CFF Impact Grants Go to 4 Online Programs Engaging Patients, Community
Columns, Life in the Grey – a Column by Bailey Anne Vincent Diagnosis Privilege Can Be a Form of Discrimination
cystic fibrosis, News CF Canada Honors thyssenkrupp Elevator Canada with National Champion Award
cystic fibrosis, News AzurRx Begins Phase 2b Trial Testing MS1819 for Pancreatic Insufficiency in CF Patients
Columns, Valiant Voice – a Column by Lara Govendo Plan A Didn’t Work — Now What?
cystic fibrosis, News CF Patients in Wales Will Have Access to Kaftrio Under New Deal
cystic fibrosis, News ContraFect Given Up to $18.9M to Advance CF-370 for P. aeruginosa Infections
cystic fibrosis, News Inflammatory Markers May Help Predict Exacerbations in Children with CF
Columns, Life in the Grey – a Column by Bailey Anne Vincent Why Am I So Ashamed of Chronic Pain?
cystic fibrosis, News Clinical Trial Data Support Efficacy of Trikafta in People with One F508del Mutation and One Other Mutation
cystic fibrosis, News Urine Marker Could Help in Screening for CF Lung Infections, Study Finds
cystic fibrosis, News Vav3 Protein Creates ‘Docking Station’ for Bacteria, Leading to Lung Infections, Scientists Discover
cystic fibrosis, News New Technology Offers Potential for Faster, More Accurate CF Diagnosis
cystic fibrosis, News Dosing Starts in Trial of Oral Treatment, CB-280, for Chronic Lung Infections
Columns, Life in the Grey – a Column by Bailey Anne Vincent I Need to Give Up on Giving Up
Columns, Victorious - a Column by Brad Dell How I Failed to Cheat Death
cystic fibrosis, News Number of Adults With CF Likely to Grow by 28% Over Decade, UK Study Says
News NIH Grant Supports Computer Modeling of Bacteria’s Behavior in Mucus
Columns, Valiant Voice – a Column by Lara Govendo I Don’t Always Wear the Badge of Bravery
News Renovion’s ARINA-1 Shows Promise in Clearing Mucus, Cell Study Finds
News Rage Biotech Opens With Goal of Treating CF and Similar Lung Diseases
News Orkambi Benefits CF Patients Across Levels of Lung Health, Study Finds
Columns, Life in the Grey – a Column by Bailey Anne Vincent I Don’t Want to Die Because You Don’t Like Masks
News Common P. aeruginosa Mutations May Lead to Biofilm Growth, Bacterial Persistence, Study Says
cystic fibrosis Women With CF Use Combined Hormonal Contraceptives More Than Other Methods, Study Reports
News NuvoAir Home Monitoring System Bolsters Telemed Use in CF, Survey Finds
cystic fibrosis, News NHS, Vertex Strike Deal to Make Kaftrio Available in England
Columns, Life in the Grey – a Column by Bailey Anne Vincent We Need Better Representation in the CF Community
Columns, Victorious - a Column by Brad Dell I’m an Adrenaline Addict, but It’s Time to Minimize Risks
cystic fibrosis, News COVID-19 Source of Anxiety for Women With CF Children, Survey Finds
cystic fibrosis, News CHMP Gives Positive Opinion to Vertex’s Triple Combination Therapy Kaftrio
Columns, Valiant Voice – a Column by Lara Govendo I’m No Longer Resisting a Rest
cystic fibrosis, News Drying Does Not Clear Nebulizers of NTM Bacteria, Study Finds
cystic fibrosis, News Biofilm ‘Channels’ May Offer Better Way of Treating CF Bacterial Infections
cystic fibrosis, News Healthy Volunteers Do Well in AR-501 Trial for Chronic Lung Infections
Columns, Life in the Grey – a Column by Bailey Anne Vincent Cystic Fibrosis and Herpes Are Not the Same Thing

October 1, 2020October 1, 2020
Study Compares Oral and Intravenous Antibiotics for P. aeruginosa Infections in People With CF

Oral antibiotics are just as effective as intravenous (into-the-vein) antibiotics at killing Pseudomonas aeruginosa bacteria in people with cystic fibrosis (CF), a ... Read more
September 30, 2020September 30, 2020
Study: Screening for Hearing Loss in CF Patients Feasible With Tablet-based Tests

Tablet-based hearing tests can accurately screen for hearing loss in people with chronic lung diseases such as cystic fibrosis (CF) without specialist supervision, according ... Read more
September 29, 2020September 25, 2020
Restoring Humanity to the Statistics of Illness

I am having trouble sleeping. Everywhere we look, it feels like the world is on fire (both figuratively and literally). And if it’s not ... Read more
September 29, 2020September 25, 2020
The Necessities of a Funeral

I had imagined that everything would move at light speed once I got the call for my lung transplant. Instead, it was a peaceful ... Read more
September 29, 2020September 29, 2020
Potential Gene Therapy, SPIRO-2101, Named Rare Pediatric and Orphan Disease by FDA

Spirovant Sciences‘ lead gene therapy candidate for select cystic fibrosis (CF) patients, SPIRO-2101, was given rare pediatric disease and orphan drug designations by the U.S. ... Read more

News, syndicated

Efforts Continue Beyond Awareness Month to Expand Newborn Screening Panels in US
September 28, 2020September 28, 2020
It took one year for Dona Krystosek to get a diagnosis for her son, ...
Columns, Mutations & Conversations - a Column by Tré LaRosa

Time Contracts Near Tragedy
September 28, 2020September 24, 2020
My last column, a letter to my younger self, was written before the pandemic. ...
cystic fibrosis, News

FDA Approves CF Treatment Kalydeco for Infants as Young as 4 Months
September 28, 2020September 28, 2020
The U.S. Food and Drug Administration (FDA) has approved Vertex Pharmaceuticals‘ Kalydeco (ivacaftor) as ...
Columns, Valiant Voice – a Column by Lara Govendo

What to Do When Depression Strikes
September 25, 2020September 23, 2020
What is that heaviness on my chest that feels like a ton of bricks, ...
cystic fibrosis, News

Emily’s Entourage Awards $790K to Support Work on CF Therapeutics
September 25, 2020September 25, 2020
Nonprofit Emily’s Entourage has awarded a total of $790,000 to four research projects focused ...
cystic fibrosis, News

GI Problems Common and ‘Intrude’ on Daily Life, CF Survey Finds
September 24, 2020September 24, 2020
Gastrointestinal (GI) problems are common to people with cystic fibrosis (CF), especially those with pancreatic ...

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Antibody Evident in Airways of CF Patients Tied to P. aeruginosa Colonization
September 23, 2020September 23, 2020
The airways of cystic fibrosis (CF) patients show unusual levels of an antibody called ...
I Am Not Your Sick Savior, and Here’s Why
September 22, 2020September 18, 2020
If I die, will it make you better? This is the storyline that appears ...
Public Invited to Vote on 2020 AbbVie CF Scholarship Awards
September 22, 2020September 22, 2020
EU’s CHMP Backs Kalydeco, Symkevi License Extension for Use in Younger Children
September 21, 2020September 21, 2020
Moderna, Vertex Team Up to Develop Gene-editing Delivery Techniques
September 18, 2020September 18, 2020
For 7th Year, Bike 2 Breathe Hits Roads in Support of Those With CF
September 17, 2020September 17, 2020

Case Report Describes Unconventional Method for Delivering PERT in Premature CF Baby
September 16, 2020September 16, 2020
Adding pancreatic enzymes to “pre-digest” food was found to be an effective way to ...
I’m Having Surgery (and Other Clickbait Headlines)
September 15, 2020September 11, 2020
Have Our Backs and Push Against Ableism With Us
September 15, 2020September 15, 2020
EMA Validates Application Seeking Expansion of Kaftrio Approval
September 15, 2020September 15, 2020

Vertex to Seek Expanded FDA Approval for Trikafta After Positive Child Safety Data
September 14, 2020September 14, 2020
Trikafta (elexacaftor/tezacaftor/ivacaftor and ivacaftor) is safe for use in children with cystic fibrosis (CF) ...
How to Keep Your Growth Game Strong
September 11, 2020September 11, 2020
Activities Underway for Newborn Screening Awareness Month
September 11, 2020September 11, 2020

cystic fibrosis, News

Aridis, FDA Agree to Simplify AR-501 Trial Design Based on Positive Safety Data
September 10, 2020September 10, 2020
The U.S. Food and Drug Administration (FDA) has agreed to simplify Aridis Pharmaceuticals‘ planned ...
cystic fibrosis, News

Savara Closing Trial of Molgradex in Treating NTM Lung Infections in CF Patients
September 9, 2020September 9, 2020
Savara Pharmaceuticals is stopping its Phase 2a exploratory clinical study of Molgradex (molgramostim nebulizer solution) to treat nontuberculous mycobacterial ...
Columns, Life in the Grey – a Column by Bailey Anne Vincent

Listening to Both Sides of the Mask Debate
September 8, 2020September 2, 2020
“I want to take my mask off.” I said these words to my daughters ...
News

$10M Grants Will Fund New Research Seeking to Improve Transplant Outcomes
September 8, 2020September 8, 2020
A series of new research projects will seek to better understand how the immune ...
cystic fibrosis, News

CF Patients With Poorer Lung Function at Greater Risk of Premature or Smaller Baby, Study Shows
September 4, 2020September 4, 2020
Pregnancy is generally safe for both women with cystic fibrosis (CF) and their child, but those ...
cystic fibrosis, News

New Technology Could Improve Detection of Biomarkers for CF, Other Diseases
September 3, 2020September 3, 2020
A new strategy for detecting very small concentrations of specific molecules could allow for ...
cystic fibrosis, News

Vertex Seeks to Expand FDA Approval of CFTR Modulators to Include More Mutations
September 2, 2020September 2, 2020
The U.S. Food and Drug Administration (FDA) is reviewing applications from Vertex Pharmaceuticals to expand ...
Columns, Life in the Grey – a Column by Bailey Anne Vincent

Advance Directives, Legacy, and Worrying Myself Sick
September 1, 2020August 27, 2020
“Do you have an advance directive?” This is something most of us with CF ...
Columns, Victorious - a Column by Brad Dell

Interventional Treatment for My Social Sickness
September 1, 2020August 27, 2020
Life is hard, ain’t it? Sometimes all you need is a long cry session ...
cystic fibrosis, News

CFF Funding Will Further ContraFect’s Research Into Alternative for Antibiotics
September 1, 2020September 1, 2020
ContraFect will receive funding from the Cystic Fibrosis Foundation to conduct preclinical research about ...
cystic fibrosis, News, syndicated

Same But Different Photo Contest Celebrates People With Rare Diseases
August 31, 2020August 31, 2020
Same But Different, a U.K. nonprofit that uses the arts to bring communities together, ...
cystic fibrosis, News

UK Registry Finds CF Community Living Longer, Becoming More Diverse
August 31, 2020August 31, 2020
People with cystic fibrosis (CF) in the U.K. have grown more numerous, older, and ...
Columns, Valiant Voice – a Column by Lara Govendo

Transplant Anniversaries Acknowledge Trauma and Triumph
August 28, 2020August 26, 2020
Transplant anniversaries are hard for me. And they’re wonderful. They’re sad, then great again. ...
cystic fibrosis, News

Trikafta’s Arrival in Canada Could Cut CF Deaths by 15% Over 10 Years, Study Suggests
August 28, 2020August 28, 2020
If Trikafta — Vertex Pharmaceuticals’ next-generation triple combination cystic fibrosis (CF) therapy — were to be ...
cystic fibrosis, News

Proteostasis Therapeutics Merges With Yumanity Therapeutics
August 27, 2020August 27, 2020
Proteostasis Therapeutics (PTI) has entered into a definitive merger agreement with Yumanity Therapeutics to ...
cystic fibrosis, News

CF Foundation Awards Nearly $15 Million to Groups Researching Infections and CF
August 26, 2020August 26, 2020
The Cystic Fibrosis Foundation (CFF) has awarded nearly $15 million to 33 organizations that ...
Columns, Life in the Grey – a Column by Bailey Anne Vincent

A New Way to Hurt: Are You ‘Healthist’?
August 25, 2020August 24, 2020
“I’m worried about your health.” I have heard this more times than I can ...
News, syndicated

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input
August 25, 2020August 25, 2020
Raremark, an online rare disease patient community, has launched a digital platform called Xperiome, ...

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Recent CF Posts

Study Compares Oral and Intravenous Antibiotics for P. aeruginosa Infections in People With CF

October 1, 2020
Study: Screening for Hearing Loss in CF Patients Feasible With Tablet-based Tests

September 30, 2020
Restoring Humanity to the Statistics of Illness

September 29, 2020

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Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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