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Columns, Valiant Voice – a Column by Lara Govendo I Don’t Always Wear the Badge of Bravery
News Renovion’s ARINA-1 Shows Promise in Clearing Mucus, Cell Study Finds
News Rage Biotech Opens With Goal of Treating CF and Similar Lung Diseases
News Orkambi Benefits CF Patients Across Levels of Lung Health, Study Finds
Columns, Life in the Grey – a Column by Bailey Anne Vincent I Don’t Want to Die Because You Don’t Like Masks
News Common P. aeruginosa Mutations May Lead to Biofilm Growth, Bacterial Persistence, Study Says
cystic fibrosis Women With CF Use Combined Hormonal Contraceptives More Than Other Methods, Study Reports
News NuvoAir Home Monitoring System Bolsters Telemed Use in CF, Survey Finds
cystic fibrosis, News NHS, Vertex Strike Deal to Make Kaftrio Available in England
Columns, Life in the Grey – a Column by Bailey Anne Vincent We Need Better Representation in the CF Community
Columns, Victorious - a Column by Brad Dell I’m an Adrenaline Addict, but It’s Time to Minimize Risks
cystic fibrosis, News COVID-19 Source of Anxiety for Women With CF Children, Survey Finds
cystic fibrosis, News CHMP Gives Positive Opinion to Vertex’s Triple Combination Therapy Kaftrio
Columns, Valiant Voice – a Column by Lara Govendo I’m No Longer Resisting a Rest
cystic fibrosis, News Drying Does Not Clear Nebulizers of NTM Bacteria, Study Finds
cystic fibrosis, News Biofilm ‘Channels’ May Offer Better Way of Treating CF Bacterial Infections
cystic fibrosis, News Healthy Volunteers Do Well in AR-501 Trial for Chronic Lung Infections
Columns, Life in the Grey – a Column by Bailey Anne Vincent Cystic Fibrosis and Herpes Are Not the Same Thing
cystic fibrosis, News Renovion Raises $8.1M to Advance Lung Inflammation, Mucus Treatment
cystic fibrosis, News, syndicated Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic
cystic fibrosis, News Eloxx Resumes Enrollment in Phase 2 Trial of ELX-02 in Europe, Israel
cystic fibrosis, News 4DMT Receives Up to $14M from CFF for Development of Customized Gene Carrier
cystic fibrosis, News Poll Results Highlight Lack of Awareness About Cystic Fibrosis in the UK
cystic fibrosis, News Second-hand Smoke Affects Metabolism in Infants and Children with CF, Study Finds
Columns, Life in the Grey – a Column by Bailey Anne Vincent Death Is Not a Good Diet Plan
Columns, Victorious - a Column by Brad Dell Finding Fate in the Fallout
cystic fibrosis, News 3rd Annual CF FamilyCon, Free and Online, Starts Thursday
cystic fibrosis, News New Combination of CFTR Mutations Found in Chinese Siblings With CF
Columns, Valiant Voice – a Column by Lara Govendo How I Regained My Independence During the Pandemic
cystic fibrosis, News England Using Home Spirometry Kits to Cut Down on Hospital Visits
cystic fibrosis, News Kalydeco Approved in Europe to Treat Children with R117H Mutation
News Coalition Will Address Racial Disparities in Rare Disease Communities
News PROMISE Study Examines Trikafta Use Among CF Patients
Columns, Life in the Grey – a Column by Bailey Anne Vincent What Recent Exposure to the Virus Means to My Daughters
cystic fibrosis, News Suppressing Function of Chloride Channel TMEM16A Eyed as Potential Therapeutic Approach
Columns, Path Unknown - a Column by Wendy Caroline We Need to Recognize Diversity in the CF Community
News Viral Makeup of Intestines in CF Children Altered, May Drive Inflammation
cystic fibrosis, News Encala Improves Fat Absorption in CF Patients With Pancreatic Insufficiency, Study Shows
cystic fibrosis Microbion Awarded $17M to Advance Inhaled Antimicrobial Pravibismane for Lung Infections
cystic fibrosis, News Georgia College Student Receives AffloVest from Legacy Project
cystic fibrosis, News CF Registry in UK Collecting Data on COVID-19 Infections
Columns, Path Unknown - a Column by Wendy Caroline Why My Service Dog Is Staying Home
cystic fibrosis, News Pravibismane Receives FDA Orphan Drug Status for Treatment of CF Lung Infections
Columns, Valiant Voice – a Column by Lara Govendo Let’s Unite to Ditch the Charade of ‘I’m Fine’
cystic fibrosis, News Mobile PERT App Helps Improve Quality of Life for Children With CF, Study Shows
cystic fibrosis, News Real-world Use of Kalydeco for CF Highly Effective, Large-scale Analysis Shows
cystic fibrosis, News Microbe DNA Discovery May Lead to Noninvasive Test for CF Infections
Columns, Life in the Grey – a Column by Bailey Anne Vincent I’m a Dancer but I Can’t Walk Right Now
Columns, Victorious - a Column by Brad Dell How Dying Taught Me to Live
cystic fibrosis, News OneLegacy Video Series Promotes Organ, Tissue Donation
cystic fibrosis, News Symdeko and Orkambi Seen to Also Ease Inflammation in CF Patients
cystic fibrosis, News Young CF Patients in UK Receive Machines for At-home Lung Monitoring During Pandemic
cystic fibrosis, News, syndicated Video Games Connect Chronically Ill Children Isolated at Home, Hospital
Columns, Life in the Grey – a Column by Bailey Anne Vincent Has the Face of Cystic Fibrosis Changed Forever?
cystic fibrosis, News Growing Lung Bacteria in Labs May Predict Antibiotics’ Effectiveness More Accurately
cystic fibrosis, News Antibiotic-resistant S. Maltophilia Spread Worldwide, Carry Diverse Genes, Study Reports
cystic fibrosis, News How Trefoil Proteins Act to Thicken Mucus Detailed in Study
Columns, Valiant Voice – a Column by Lara Govendo The Story Behind Awareness
cystic fibrosis, News CF Awareness Month Activities Varied, But Virtual, This Year
cystic fibrosis Phase 1b Study of CB-280 for CF Chronic Lung Infections May Open by September
Columns, Life in the Grey – a Column by Bailey Anne Vincent How to Be Forgotten in 800 Words or Less
Columns, Victorious - a Column by Brad Dell Stuck Between Nostalgia and Reality
cystic fibrosis, News Gene Therapy, KB407, Seen to Restore CFTR Protein in Cell Studies
cystic fibrosis, News Researchers Develop Promising Antibiotic Molecule for Drug-resistant Lung Infections
cystic fibrosis Trikafta Very Effective CF Therapy, But Still Too Costly, ICER Reports
cystic fibrosis, News CF Foundation, Beam Partner to Offer Free Online Exercise Classes
cystic fibrosis AzurRx BioPharma Will Conduct Phase 2b Trial of MS1819 at TDN Clinical Sites
Columns, Life in the Grey – a Column by Bailey Anne Vincent Stop Making Yourself Sick About Other Sick People
cystic fibrosis, News COVID-19 Outcomes in CF Patients Similar to General Public, Study Suggests
cystic fibrosis, News CHMP Favors Expanding Kalydeco Label to Include Young Children With R117H Mutation
Columns, Valiant Voice – a Column by Lara Govendo The Counseling Connection
cystic fibrosis, News Vertex Joins with Affinia Therapeutics to Develop Gene Therapies for CF
cystic fibrosis Orkambi Helps to Promote Glucose Tolerance in CF Patients, Study Finds
Columns, Life in the Grey – a Column by Bailey Anne Vincent Help! Quarantine Is Making Me Less Compliant
cystic fibrosis, News Estrogen in Birth Control Pills May Affect Bone Health of CF Patients
cystic fibrosis, News Lung Clearance Index Best Judge of Nighttime Hypoxemia, Study Suggests
cystic fibrosis, News Recommendations Issued About Managing Chronic Disease in Children
cystic fibrosis, News Use of Vertex’s Orkambi and Symdeko To Be Reimbursed in Switzerland
cystic fibrosis Zikani Raises $7.5M to Support Work into Therapies for Nonsense Mutations
Columns, Life in the Grey – a Column by Bailey Anne Vincent I Wish I Was Sheltered in Place with Anyone but Me
cystic fibrosis New Capsules Being Readied for Trial of Digestive Enzyme in CF Patients with EPI
cystic fibrosis, News Staphylococcus Aureus in CF Airways Change With Age, Antibiotic Use, Study Says
cystic fibrosis, News Protein Called TAS2R38 Linked to Respiratory Tract Complications in CF
Columns, Valiant Voice – a Column by Lara Govendo The Transformation of Transplantation
cystic fibrosis, News Case Report Cites IDPN as Nutritional Tool in CF Patients with Kidney Disease
cystic fibrosis, News Planned CHOICES Trial in Rare CF Mutations Given Regulatory Support
Columns, Life in the Grey – a Column by Bailey Anne Vincent I Am Not a Pre-existing Condition
Columns, Victorious - a Column by Brad Dell Maybe I’m Not Fine. Are You?
cystic fibrosis Arrowhead Asks to Open Phase 1/2 Trial into Inhaled RNAi Therapy
Columns, Path Unknown - a Column by Wendy Caroline The US Healthcare System Desperately Needs Change
cystic fibrosis Trial of Inhaled Treatment for P. aeruginosa Infections Enrolling CF Patients
Becoming Visible – a Column by Elizabeth Rogers, Columns Finding My Zen in Animal Crossing
cystic fibrosis, News AbbVie CF Scholarship Program Open for 2020-21 School Year
cystic fibrosis, News Kalydeco’s Use for 1 Year or More Seen to Aid Body Mass and Lung Capacity
cystic fibrosis, News More Training Needed in CF End-of-life Care, Small UK Survey Shows
Columns, Life in the Grey – a Column by Bailey Anne Vincent How Essential Am I?
cystic fibrosis, News Case Report Describes Unusual CF Symptoms That Made Diagnosis Difficult
Columns, Path Unknown - a Column by Wendy Caroline How Isolation Has Brought Calm to My Life
cystic fibrosis NORD’s Advice on COVID-19: You’re Stronger Than You Think
cystic fibrosis, News CF Specialists Need More Education on Current Lung Transplant Referral Guidelines, Study Finds

July 10, 2020July 8, 2020
I Don’t Always Wear the Badge of Bravery

In my previous life (pre-double-lung transplant) I was the bravest I’ve ever been. Before my transplant, the most important piece of my identity was ... Read more
July 10, 2020July 10, 2020
Renovion’s ARINA-1 Shows Promise in Clearing Mucus, Cell Study Finds

ARINA-1, a nebulized therapy being developed by Renovion for cystic fibrosis (CF) and other chronic inflammatory lung diseases, may be better than currently available options for ... Read more
July 9, 2020July 10, 2020
Rage Biotech Opens With Goal of Treating CF and Similar Lung Diseases

Rage Biotech, a new company building on research done at leading Australian universities, aims to develop treatments to help people with chronic inflammatory lung diseases, ... Read more
July 8, 2020July 8, 2020
Orkambi Benefits CF Patients Across Levels of Lung Health, Study Finds

Orkambi (ivacaftor/lumacaftor) can significantly reduce the number of days people with cystic fibrosis (CF) require intravenous antibiotics for flares and helps with ... Read more
July 7, 2020June 30, 2020
I Don’t Want to Die Because You Don’t Like Masks

Wear a mask for me. The more I see friends post anti-mask passions as if they were a political statement, the more I wonder ... Read more

News

Common P. aeruginosa Mutations May Lead to Biofilm Growth, Bacterial Persistence, Study Says
July 7, 2020July 7, 2020
The common mutations that cause Pseudomonas aeruginosa to lose their ability to move are ...
cystic fibrosis

Women With CF Use Combined Hormonal Contraceptives More Than Other Methods, Study Reports
July 6, 2020July 6, 2020
Among women of childbearing age with cystic fibrosis (CF), the use of combined hormonal ...
News

NuvoAir Home Monitoring System Bolsters Telemed Use in CF, Survey Finds
July 2, 2020July 2, 2020
Cystic fibrosis (CF) patients who monitored their lung function at home using NuvoAir‘s handheld spirometer and ...
cystic fibrosis, News

NHS, Vertex Strike Deal to Make Kaftrio Available in England
July 1, 2020July 1, 2020
NHS England and Vertex Pharmaceuticals have reached an agreement that will allow access to ...
Columns, Life in the Grey – a Column by Bailey Anne Vincent

We Need Better Representation in the CF Community
June 30, 2020June 26, 2020
As a health writer, I hesitate to cover topics that don’t fit directly into ...
Columns, Victorious - a Column by Brad Dell

I’m an Adrenaline Addict, but It’s Time to Minimize Risks
June 30, 2020June 26, 2020
Many people think I’m reckless … and I guess I really kind of am. ...

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COVID-19 Source of Anxiety for Women With CF Children, Survey Finds
June 30, 2020June 30, 2020
Anxiety related to fears of COVID-19 infection was higher among mothers of children with cystic fibrosis ...
CHMP Gives Positive Opinion to Vertex’s Triple Combination Therapy Kaftrio
June 29, 2020June 29, 2020
The Committee for Medicinal Products for Human Use (CHMP) has issued a positive opinion ...
I’m No Longer Resisting a Rest
June 26, 2020June 24, 2020
Drying Does Not Clear Nebulizers of NTM Bacteria, Study Finds
June 26, 2020June 26, 2020
Biofilm ‘Channels’ May Offer Better Way of Treating CF Bacterial Infections
June 25, 2020June 25, 2020
Healthy Volunteers Do Well in AR-501 Trial for Chronic Lung Infections
June 24, 2020June 24, 2020

Cystic Fibrosis and Herpes Are Not the Same Thing
June 23, 2020June 19, 2020
I don’t have herpes. I need to clarify this. I don’t have herpes, or ...
Renovion Raises $8.1M to Advance Lung Inflammation, Mucus Treatment
June 23, 2020June 23, 2020
Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic
June 22, 2020June 22, 2020
Eloxx Resumes Enrollment in Phase 2 Trial of ELX-02 in Europe, Israel
June 22, 2020June 22, 2020

4DMT Receives Up to $14M from CFF for Development of Customized Gene Carrier
June 19, 2020June 19, 2020
After being given more than $3 million from the Cystic Fibrosis Foundation (CFF) in ...
Poll Results Highlight Lack of Awareness About Cystic Fibrosis in the UK
June 18, 2020June 18, 2020
Second-hand Smoke Affects Metabolism in Infants and Children with CF, Study Finds
June 17, 2020June 17, 2020

Columns, Life in the Grey – a Column by Bailey Anne Vincent

Death Is Not a Good Diet Plan
June 16, 2020June 12, 2020
If I die from anything, it’s going to be food. I have gone without ...
Columns, Victorious - a Column by Brad Dell

Finding Fate in the Fallout
June 16, 2020June 16, 2020
In my last column, I described how nearly dying made me a better person. ...
cystic fibrosis, News

3rd Annual CF FamilyCon, Free and Online, Starts Thursday
June 16, 2020June 16, 2020
The third annual CF FamilyCon, a free and online event that connects people with ...
cystic fibrosis, News

New Combination of CFTR Mutations Found in Chinese Siblings With CF
June 15, 2020June 15, 2020
A combination of two mutations, including one that had never been reported, were found ...
Columns, Valiant Voice – a Column by Lara Govendo

How I Regained My Independence During the Pandemic
June 12, 2020June 11, 2020
As restrictions from COVID-19 lift ’round these parts, my urge to get back to ...
cystic fibrosis, News

England Using Home Spirometry Kits to Cut Down on Hospital Visits
June 12, 2020June 12, 2020
Thousands of people in England with cystic fibrosis (CF) soon will be equipped with ...
cystic fibrosis, News

Kalydeco Approved in Europe to Treat Children with R117H Mutation
June 11, 2020June 11, 2020
The European Commission has approved Vertex’s Kalydeco (ivacaftor) for the treatment of children and ...
News

Coalition Will Address Racial Disparities in Rare Disease Communities
June 10, 2020June 10, 2020
The Black Women’s Health Imperative (BWHI) recently created a Rare Disease Diversity Coalition focused ...
News

PROMISE Study Examines Trikafta Use Among CF Patients
June 10, 2020June 16, 2020
In the seven months since Vertex Pharmaceuticals’ triple-combo therapy Trikafta (elexacaftor/tezacaftor/ivacaftor) hit the market, ...
Columns, Life in the Grey – a Column by Bailey Anne Vincent

What Recent Exposure to the Virus Means to My Daughters
June 9, 2020June 2, 2020
I’m supposed to stay away from my children. They may have accidentally been exposed ...
cystic fibrosis, News

Suppressing Function of Chloride Channel TMEM16A Eyed as Potential Therapeutic Approach
June 9, 2020June 15, 2020
Researchers have reported the case of two siblings with impaired CFTR function due to ...
Columns, Path Unknown - a Column by Wendy Caroline

We Need to Recognize Diversity in the CF Community
June 8, 2020June 5, 2020
A lot is happening in the world right now. We are in the midst ...
News

Viral Makeup of Intestines in CF Children Altered, May Drive Inflammation
June 8, 2020June 8, 2020
Children with cystic fibrosis (CF) have an altered intestinal virome, or viral communities, compared ...
cystic fibrosis, News

Encala Improves Fat Absorption in CF Patients With Pancreatic Insufficiency, Study Shows
June 5, 2020July 9, 2020
Investigational treatment Encala (Lym-X-Sorb) is safe, well tolerated, and increased dietary fat absorption in ...
cystic fibrosis

Microbion Awarded $17M to Advance Inhaled Antimicrobial Pravibismane for Lung Infections
June 4, 2020June 5, 2020
Microbion has been awarded up to $17.1 million from the nonprofit CARB-X and the ...
cystic fibrosis, News

Georgia College Student Receives AffloVest from Legacy Project
June 3, 2020June 3, 2020
A deputy sheriff’s squad car, lights ablaze and sirens blaring, recently raced to Benjamin ...
cystic fibrosis, News

CF Registry in UK Collecting Data on COVID-19 Infections
June 2, 2020June 2, 2020
During COVID-19, the U.K. Cystic Fibrosis Registry is taking steps to further the collection of ...
Columns, Path Unknown - a Column by Wendy Caroline

Why My Service Dog Is Staying Home
June 1, 2020May 28, 2020
COVID-19 has uprooted my life in many ways. Some are obvious, some are not. ...

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Recent CF Posts

I Don’t Always Wear the Badge of Bravery

July 10, 2020
Renovion’s ARINA-1 Shows Promise in Clearing Mucus, Cell Study Finds

July 10, 2020
Rage Biotech Opens With Goal of Treating CF and Similar Lung Diseases

July 9, 2020

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I’m No Longer Resisting a Rest

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I’m an Adrenaline Addict, but It’s Time to Minimize Risks

June 30, 2020

We Need Better Representation in the CF Community

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Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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