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cystic fibrosis, News Preclinical Work Supports ELX-02, Potential Treatment for Nonsense Mutations
cystic fibrosis, News $200K Donation Will Support Respiratory Care on CF, Other Lung Disorders
cystic fibrosis, News CFF Award to Advance Synspira’s Treatments for Malabsorption, Lung Infections
cystic fibrosis, News Inhaled Tobramycin Effectively Treats Initial P. aeruginosa Infections in CF
Columns, Life in the Grey – a Column by Bailey Anne Vincent To the Doctors Who Didn’t Listen
cystic fibrosis, News FDA Clears Clinical Trial of AP-PA02 Phage Therapy for P. aeruginosa Infections
News, syndicated Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say
Columns, Valiant Voice – a Column by Lara Govendo True Story: I Got Fired for Being Sick
cystic fibrosis, News Trial Enrolling Patients With Severe Digestive Enzyme Deficiency in Europe
cystic fibrosis, News New Inhaled Therapy IONIS-ENAC-2.5Rx Shows Promise in Phase 1/2a Trial
cystic fibrosis, News Toronto Scientist Wins Award for Work Into Alternative Way of Treating CF
Columns, Victorious - a Column by Brad Dell If You’ve Lost Hope, Read This
cystic fibrosis, News Trial of Oral CB-280 for Chronic Lung Infections in CF Enrolling Across US
Columns, Path Unknown - a Column by Wendy Caroline The ‘5-year Plan’ Is Not for the Chronically Ill
Columns, Mutations & Conversations - a Column by Tré LaRosa Contemplating Our Identity
cystic fibrosis, News Certain Factors Could Predict Severe Episodes of Coughing Up Blood in CF Patients, Study Says
cystic fibrosis, News Roche Acquires TMEM16A Portfolio for CF Treatment
cystic fibrosis, News Tobacco Smoke Exposure Limits Symdeko Benefit in Pediatric CF Patients
cystic fibrosis, News Lenabasum Fails to Lessen Exacerbations in CF Patients in Phase 2 Trial
cystic fibrosis, News Twincer Inhaler May Be Better Alternative to Nebulizers for Colistin Treatment
News Student-Led Konglomerate Games Wins Entrepreneurship Award for CF Therapy Game
cystic fibrosis, News NTM Infection Rate in Young CF Patients in UK Remains Stable But High, Study Finds
cystic fibrosis, News Study Compares Oral and Intravenous Antibiotics for P. aeruginosa Infections in People With CF
cystic fibrosis, News Study: Screening for Hearing Loss in CF Patients Feasible With Tablet-based Tests
Columns, Life in the Grey – a Column by Bailey Anne Vincent Restoring Humanity to the Statistics of Illness
Columns, Victorious - a Column by Brad Dell The Necessities of a Funeral
cystic fibrosis, News Potential Gene Therapy, SPIRO-2101, Named Rare Pediatric and Orphan Disease by FDA
Columns, Mutations & Conversations - a Column by Tré LaRosa Time Contracts Near Tragedy
cystic fibrosis, News FDA Approves CF Treatment Kalydeco for Infants as Young as 4 Months
Columns, Valiant Voice – a Column by Lara Govendo What to Do When Depression Strikes
cystic fibrosis, News Emily’s Entourage Awards $790K to Support Work on CF Therapeutics
cystic fibrosis, News GI Problems Common and ‘Intrude’ on Daily Life, CF Survey Finds
cystic fibrosis Antibody Evident in Airways of CF Patients Tied to P. aeruginosa Colonization
Columns, Life in the Grey – a Column by Bailey Anne Vincent I Am Not Your Sick Savior, and Here’s Why
cystic fibrosis, News Public Invited to Vote on 2020 AbbVie CF Scholarship Awards
cystic fibrosis, News EU’s CHMP Backs Kalydeco, Symkevi License Extension for Use in Younger Children
cystic fibrosis, News Moderna, Vertex Team Up to Develop Gene-editing Delivery Techniques
cystic fibrosis, News For 7th Year, Bike 2 Breathe Hits Roads in Support of Those With CF
News Case Report Describes Unconventional Method for Delivering PERT in Premature CF Baby
Columns, Life in the Grey – a Column by Bailey Anne Vincent I’m Having Surgery (and Other Clickbait Headlines)
Columns, Victorious - a Column by Brad Dell Have Our Backs and Push Against Ableism With Us
cystic fibrosis, News EMA Validates Application Seeking Expansion of Kaftrio Approval
cystic fibrosis, News Vertex to Seek Expanded FDA Approval for Trikafta After Positive Child Safety Data
Columns, Valiant Voice – a Column by Lara Govendo How to Keep Your Growth Game Strong
cystic fibrosis, News Aridis, FDA Agree to Simplify AR-501 Trial Design Based on Positive Safety Data
cystic fibrosis, News Savara Closing Trial of Molgradex in Treating NTM Lung Infections in CF Patients
Columns, Life in the Grey – a Column by Bailey Anne Vincent Listening to Both Sides of the Mask Debate
News $10M Grants Will Fund New Research Seeking to Improve Transplant Outcomes
cystic fibrosis, News CF Patients With Poorer Lung Function at Greater Risk of Premature or Smaller Baby, Study Shows
cystic fibrosis, News New Technology Could Improve Detection of Biomarkers for CF, Other Diseases
cystic fibrosis, News Vertex Seeks to Expand FDA Approval of CFTR Modulators to Include More Mutations
Columns, Life in the Grey – a Column by Bailey Anne Vincent Advance Directives, Legacy, and Worrying Myself Sick
Columns, Victorious - a Column by Brad Dell Interventional Treatment for My Social Sickness
cystic fibrosis, News CFF Funding Will Further ContraFect’s Research Into Alternative for Antibiotics
cystic fibrosis, News, syndicated Same But Different Photo Contest Celebrates People With Rare Diseases
cystic fibrosis, News UK Registry Finds CF Community Living Longer, Becoming More Diverse
Columns, Valiant Voice – a Column by Lara Govendo Transplant Anniversaries Acknowledge Trauma and Triumph
cystic fibrosis, News Trikafta’s Arrival in Canada Could Cut CF Deaths by 15% Over 10 Years, Study Suggests
cystic fibrosis, News Proteostasis Therapeutics Merges With Yumanity Therapeutics
cystic fibrosis, News CF Foundation Awards Nearly $15 Million to Groups Researching Infections and CF
Columns, Life in the Grey – a Column by Bailey Anne Vincent A New Way to Hurt: Are You ‘Healthist’?
cystic fibrosis, News Muscles of CF Youth Consume Oxygen Faster Than Peers, Affecting Exercise
cystic fibrosis, News Vertex Triple Combo, Kaftrio, Approved for CF Patients in EU With F508del Mutation
cystic fibrosis, News NuvoAir Home Platform Classified as Class Im Medical Device
cystic fibrosis, News FDA Grants Orphan Drug Designation to KB407, Potential Gene Therapy for CF
cystic fibrosis Dosing Begins in Phase 1 Trial of ETD002, Potential CF Inhalation Therapy
Columns, Life in the Grey – a Column by Bailey Anne Vincent The Painful Truth About Being a Sick Parent
Columns, Victorious - a Column by Brad Dell How to Gain Weight: 7 Less Traditional Methods
cystic fibrosis, News Work Proudly Program to Help 15 CF Patients or Caregivers Find Flexible Jobs
cystic fibrosis, News First Patients Enrolled in Phase 2b Trial Testing MS1819 for Exocrine Pancreatic Insufficiency in CF
Columns, Valiant Voice – a Column by Lara Govendo A Giant Win After a Big Loss
News MS1819-PERT Combo Shows Benefits for CF Patients With EPI in Phase 2 Trial
cystic fibrosis, News First Participants Dosed in Early Clinical Trial of Inhaled Therapy ARO-ENaC
cystic fibrosis, News Cystic Fibrosis Ireland Establishes Grants for Personal Protective Equipment
Columns, Life in the Grey – a Column by Bailey Anne Vincent Does Everyone With CF Have Body Dysmorphia?
cystic fibrosis, News Research May Explain Why Different CF Bacteria Infect at Certain Ages
cystic fibrosis, News CF Foundation Invests $20M to Accelerate CF Programs in Partnership With Longwood Fund
cystic fibrosis, News Screening Finds Fewer Newborns in Ireland With CF Than Expected
cystic fibrosis ELX-02, Potential Therapy for CF Nonsense Mutations, Named Orphan Drug
cystic fibrosis, News Scottish Government and Vertex Strike Deal for Access to Kaftrio
Columns, Life in the Grey – a Column by Bailey Anne Vincent Putting Body Image Issues Behind Me: A #ScarPositive Story
cystic fibrosis, News Higher Prevalence of Oral Candida Fungus Found in CF Patients
Columns, Path Unknown - a Column by Wendy Caroline An Open Letter to the Chronically Ill Professional
cystic fibrosis, News Northern Ireland Reaches Deal With Vertex for Access to Kaftrio
cystic fibrosis, News Real-world Impact of Trikafta Will Be Evaluated in RECOVER Study
cystic fibrosis, News Thread-based Wearable Device May Help Diagnose, Monitor CF and Other Conditions
cystic fibrosis, News CFF Impact Grants Go to 4 Online Programs Engaging Patients, Community
Columns, Life in the Grey – a Column by Bailey Anne Vincent Diagnosis Privilege Can Be a Form of Discrimination
cystic fibrosis, News CF Canada Honors thyssenkrupp Elevator Canada with National Champion Award
cystic fibrosis, News AzurRx Begins Phase 2b Trial Testing MS1819 for Pancreatic Insufficiency in CF Patients
Columns, Valiant Voice – a Column by Lara Govendo Plan A Didn’t Work — Now What?
cystic fibrosis, News CF Patients in Wales Will Have Access to Kaftrio Under New Deal
cystic fibrosis, News ContraFect Given Up to $18.9M to Advance CF-370 for P. aeruginosa Infections
cystic fibrosis, News Inflammatory Markers May Help Predict Exacerbations in Children with CF
Columns, Life in the Grey – a Column by Bailey Anne Vincent Why Am I So Ashamed of Chronic Pain?
cystic fibrosis, News Clinical Trial Data Support Efficacy of Trikafta in People with One F508del Mutation and One Other Mutation
cystic fibrosis, News Urine Marker Could Help in Screening for CF Lung Infections, Study Finds
cystic fibrosis, News Vav3 Protein Creates ‘Docking Station’ for Bacteria, Leading to Lung Infections, Scientists Discover
cystic fibrosis, News New Technology Offers Potential for Faster, More Accurate CF Diagnosis
cystic fibrosis, News Dosing Starts in Trial of Oral Treatment, CB-280, for Chronic Lung Infections

October 26, 2020October 26, 2020
Preclinical Work Supports ELX-02, Potential Treatment for Nonsense Mutations

Eloxx Pharmaceuticals presented preclinical safety and efficacy data supporting ELX-02, its investigational treatment for cystic fibrosis (CF) caused by nonsense mutations that is ... Read more
October 23, 2020October 23, 2020
$200K Donation Will Support Respiratory Care on CF, Other Lung Disorders

The National Board for Respiratory Care (NBRC) has launched “CHOOSE ONE: Every Breath Counts Campaign,” a fundraising initiative intended to protect and improve the ... Read more
October 22, 2020October 22, 2020
CFF Award to Advance Synspira’s Treatments for Malabsorption, Lung Infections

The Cystic Fibrosis Foundation (CFF) is awarding Synspira Therapeutics up to $14 million in additional funding to support the development of two therapies to ... Read more
October 21, 2020October 21, 2020
Inhaled Tobramycin Effectively Treats Initial P. aeruginosa Infections in CF

Inhaled tobramycin alone works as well at eradicating an initial infection by Pseudomonas aeruginosa bacteria in people with cystic fibrosis (CF), and its use ... Read more
October 20, 2020October 16, 2020
To the Doctors Who Didn’t Listen

To the doctors who didn’t listen to me: You were wrong. I remember the time I arrived in the ER six years ago, a ... Read more

cystic fibrosis, News

FDA Clears Clinical Trial of AP-PA02 Phage Therapy for P. aeruginosa Infections
October 20, 2020October 20, 2020
The U.S. Food and Drug Administration (FDA) cleared Armata Pharmaceuticals‘ investigational new drug (IND) ...
News, syndicated

Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say
October 19, 2020October 19, 2020
A majority of rare disease patients using telehealth during the COVID-19 pandemic thought the experience ...
Columns, Valiant Voice – a Column by Lara Govendo

True Story: I Got Fired for Being Sick
October 16, 2020October 15, 2020
I remember what it felt like to get fired for being sick: that pit ...
cystic fibrosis, News

Trial Enrolling Patients With Severe Digestive Enzyme Deficiency in Europe
October 16, 2020October 16, 2020
A Phase 2 clinical trial investigating MS1819 in combination with stable pancreatic enzyme replacement therapy (PERT) to treat exocrine ...
cystic fibrosis, News

New Inhaled Therapy IONIS-ENAC-2.5Rx Shows Promise in Phase 1/2a Trial
October 15, 2020October 15, 2020
Ionis Pharmaceuticals’ investigational inhaled therapy IONIS-ENAC-2.5Rx showed promise in a Phase 1/2a study as ...
cystic fibrosis, News

Toronto Scientist Wins Award for Work Into Alternative Way of Treating CF
October 14, 2020October 14, 2020
Medicine by Design, which supports work in regenerative medicines, gave a 2020 New Ideas ...

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If You’ve Lost Hope, Read This
October 13, 2020October 14, 2020
I should’ve died years ago, but I’m too damn competitive. A doctor said I’d ...
Trial of Oral CB-280 for Chronic Lung Infections in CF Enrolling Across US
October 13, 2020October 13, 2020
A Phase 1b clinical trial evaluating Calithera Biosciences’ investigational oral therapy CB-280 is recruiting ...
The ‘5-year Plan’ Is Not for the Chronically Ill
October 12, 2020October 8, 2020
Contemplating Our Identity
October 12, 2020October 8, 2020
Certain Factors Could Predict Severe Episodes of Coughing Up Blood in CF Patients, Study Says
October 12, 2020October 12, 2020
Roche Acquires TMEM16A Portfolio for CF Treatment
October 9, 2020October 9, 2020

Tobacco Smoke Exposure Limits Symdeko Benefit in Pediatric CF Patients
October 8, 2020October 9, 2020
Exposure to tobacco smoke limits the medicinal benefit of Symdeko (tezacaftor/ivacaftor combo) in young ...
Lenabasum Fails to Lessen Exacerbations in CF Patients in Phase 2 Trial
October 7, 2020October 7, 2020
Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos
October 7, 2020October 7, 2020
Twincer Inhaler May Be Better Alternative to Nebulizers for Colistin Treatment
October 6, 2020October 6, 2020

Student-Led Konglomerate Games Wins Entrepreneurship Award for CF Therapy Game
October 5, 2020October 5, 2020
Konglomerate Games, the student-made company that developed a video game to encourage children with ...
NTM Infection Rate in Young CF Patients in UK Remains Stable But High, Study Finds
October 2, 2020October 2, 2020
Study Compares Oral and Intravenous Antibiotics for P. aeruginosa Infections in People With CF
October 1, 2020October 1, 2020

cystic fibrosis, News

Study: Screening for Hearing Loss in CF Patients Feasible With Tablet-based Tests
September 30, 2020September 30, 2020
Tablet-based hearing tests can accurately screen for hearing loss in people with chronic lung ...
Columns, Life in the Grey – a Column by Bailey Anne Vincent

Restoring Humanity to the Statistics of Illness
September 29, 2020September 25, 2020
I am having trouble sleeping. Everywhere we look, it feels like the world is ...
Columns, Victorious - a Column by Brad Dell

The Necessities of a Funeral
September 29, 2020September 25, 2020
I had imagined that everything would move at light speed once I got the ...
cystic fibrosis, News

Potential Gene Therapy, SPIRO-2101, Named Rare Pediatric and Orphan Disease by FDA
September 29, 2020September 29, 2020
Spirovant Sciences‘ lead gene therapy candidate for select cystic fibrosis (CF) patients, SPIRO-2101, was given ...
News, syndicated

Efforts Continue Beyond Awareness Month to Expand Newborn Screening Panels in US
September 28, 2020September 28, 2020
It took one year for Dona Krystosek to get a diagnosis for her son, ...
Columns, Mutations & Conversations - a Column by Tré LaRosa

Time Contracts Near Tragedy
September 28, 2020September 24, 2020
My last column, a letter to my younger self, was written before the pandemic. ...
cystic fibrosis, News

FDA Approves CF Treatment Kalydeco for Infants as Young as 4 Months
September 28, 2020September 28, 2020
The U.S. Food and Drug Administration (FDA) has approved Vertex Pharmaceuticals‘ Kalydeco (ivacaftor) as ...
Columns, Valiant Voice – a Column by Lara Govendo

What to Do When Depression Strikes
September 25, 2020September 23, 2020
What is that heaviness on my chest that feels like a ton of bricks, ...
cystic fibrosis, News

Emily’s Entourage Awards $790K to Support Work on CF Therapeutics
September 25, 2020September 25, 2020
Nonprofit Emily’s Entourage has awarded a total of $790,000 to four research projects focused ...
cystic fibrosis, News

GI Problems Common and ‘Intrude’ on Daily Life, CF Survey Finds
September 24, 2020September 24, 2020
Gastrointestinal (GI) problems are common to people with cystic fibrosis (CF), especially those with pancreatic ...
cystic fibrosis

Antibody Evident in Airways of CF Patients Tied to P. aeruginosa Colonization
September 23, 2020September 23, 2020
The airways of cystic fibrosis (CF) patients show unusual levels of an antibody called ...
Columns, Life in the Grey – a Column by Bailey Anne Vincent

I Am Not Your Sick Savior, and Here’s Why
September 22, 2020September 18, 2020
If I die, will it make you better? This is the storyline that appears ...
cystic fibrosis, News

Public Invited to Vote on 2020 AbbVie CF Scholarship Awards
September 22, 2020September 22, 2020
The public is being invited to vote on 2020 AbbVie Scholarships for students with ...
cystic fibrosis, News

EU’s CHMP Backs Kalydeco, Symkevi License Extension for Use in Younger Children
September 21, 2020September 21, 2020
The European Medicines Agency (EMA) Committee for Medicinal Products for Human Use (CHMP) has ...
cystic fibrosis, News

Moderna, Vertex Team Up to Develop Gene-editing Delivery Techniques
September 18, 2020September 18, 2020
Moderna Therapeutics and Vertex Pharmaceuticals have entered a three-year research and licensing agreement aimed ...
cystic fibrosis, News

For 7th Year, Bike 2 Breathe Hits Roads in Support of Those With CF
September 17, 2020September 17, 2020
The 7th edition of Bike 2 Breathe, an initiative aiming to raise funds and ...
News

Case Report Describes Unconventional Method for Delivering PERT in Premature CF Baby
September 16, 2020September 16, 2020
Adding pancreatic enzymes to “pre-digest” food was found to be an effective way to ...
Columns, Life in the Grey – a Column by Bailey Anne Vincent

I’m Having Surgery (and Other Clickbait Headlines)
September 15, 2020September 11, 2020
One of the hardest things to deal with in life are the “unknown knowns.” ...

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Recent CF Posts

Preclinical Work Supports ELX-02, Potential Treatment for Nonsense Mutations

October 26, 2020
$200K Donation Will Support Respiratory Care on CF, Other Lung Disorders

October 23, 2020
CFF Award to Advance Synspira’s Treatments for Malabsorption, Lung Infections

October 22, 2020

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Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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