What’s in my bag? Wallet, keys, and a CF emergency kit.
I’ve always carried a heavy purse. Stay with me here. Years ago, when I was waiting for a double-lung transplant, my mom would often accompany me to my doctor appointments. She’d graciously offer to carry my bag, but almost always commented on the weight. “What the heck do you…
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Newborn CF screening tied to lower health costs in 1st year of life
Among methods used to diagnose cystic fibrosis (CF) in France, newborn screening (NBS) was associated with the lowest healthcare expenses during the first year of life, according to a large, population-based study. Fewer inpatient hospitalizations primarily drove the lower costs when infants were diagnosed via NBS, the data showed.
I have a love-hate relationship with my port-a-cath
Living with cystic fibrosis (CF) has required various hardware to be placed in my body, including a port-a-cath in my chest. This allows me to do blood draws and receive medication in the easiest way possible. Although my journey with this device has been like a roller coaster, I’m…
Perspectives
Newly diagnosed? Start your journey here.
Need to know
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
Personal experiences
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
Treatment
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.