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I learned the hard way how to recognize signs of hypoxia

I felt like I’d received a roundhouse kick to the head while drunk. My head was pounding and I couldn’t think straight. Words were difficult to form. Sentences seemed impossible. This might sound like the result of a wild night of partying, but for me, these were actually signs of…

I’m still waiting for spring to bring me back to life

We’ve been having such a slow-developing spring here in Pennsylvania. The temperatures have been lower than normal, and it feels like it’s been raining for months. I must continually remind myself not to complain about it. Yet some years, it’s felt like we’ve gone from freezing cold and snow to…

Thank you to my nurses, the real MVPs of CF and transplant care

Nurses save lives. It might sound dramatic, but it’s true. Throughout my journey with cystic fibrosis (CF) and a double-lung transplant nearly eight years ago, I’ve encountered nurses in every season of life. They’ve been present in both inpatient and outpatient settings. They’ve coordinated my care, worked behind…